A few years ago the US Government paid a $Billion each to a couple of big pharma companies. The result was they each came up with a vaccine in a few months. How much money have we heard about the US Government providing for Parkinson's research? By the way - Parkinson's is the fastest growing neurological disease on the planet. I think it is about time I quit telling people I'm doing ok with my disease.
PD to me is a dripping faucet, it is stealing the things that used to bring me joy - 1 drip at a time. It not only is stealing my joy but it also steals my wifes joy.
I don't advocate everyone start whining about our fate and becoming a pain in the ass to all of the caregivers around us, but I have decided to work on letting people know about all the hidden issues that PD has put into my life that doesn't get talked about. Mood swings, hard to control emotions, constipation, severe sensitivity to cold of course I could go on. Every time I walk I have to be mindful or I will fall. I can NEVER again just start walking because of the risk of falling.
OK I will quit my rant now.
I will still wake up tomorrow and be thankful for all the blessings I have in my life. but it would give us all more hope if our disease got more attention from the news media.

You are absolutely correct. It keeps taking away and you have to reinventing yourself. It can be and is exhausting. Fellowship and maintaining some sense of humor helps. Hugs

When we say you don't die from parkinsons but it contributes ..what are we saying? Parkinsons is causing my heart to go into attack after all the heart is a muscle and every muscle in my body is rigid and stiff because of my parkinsons. Now I'm not a pessimist I'm living my life as fully as possible and I'm going to grab it with both hands. However I am a realist and know that my life is shortened because of parkinsons, I know my heart wouldn't go in to attack mode if I didn't have this condition. Plus if I fall because my legs are so stiff I can barely walk somedays and kill myself that is because I have PARKINSONS

I too, know that God is in control. Each night when I kneel down at my bed I thank The Lord for the blessings of the day. Each morning when I wake up again, I thank the Lord and pray that I will have another good day.

God is in control and I accept his will, when I pray, I pray for all those who have PD. I pray, that those who I love will be healthy and strong, NO PD!

🦉

My husband had Alzheimer’s and was in the final stage as far as I could see, but while Alzheimer’s didn’t help his cause of death was metastatic prostate cancer; not what I expected. Of course he was 90years old. He went when it was his time. My autonomic system is breaking down but if a bus runs
me down my MSA won’t really matter. Regardless of WHY we die it’s how we lived that’s important.