Diagnosed 2000. Progressive shaking, shuffling, freezing, wheel chair, mobility scooter, unable to walk by 2012. Bouts of depression to the point of death. 2012 Duodopa, began to walk carefully, 2024 walking, no shakes, almost no freezing, no wheelchair or help walking at all. 🙂

Video below 😁😁😁😁

I was diagnosed with Parkinson's over 20 years ago and my first symptom was shaking of my right hand since then I went from a king to a walker to a wheelchair full-time now to this day I can barely walk and I need help with dressing showering and all my daily activities including my medications I hope this gives you some indication on what you have to look forward to I still am very positive about things and I don't have anything to be sorry for myself I have a great support system had a wonderful caregiver which is my husband Ed I don't know what I would do without him Julie Olson 359.

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A MyParki...

@A MyParkinsonsTeam Member

Don't get me started, I can feel my blood boiling 😏 !
The pump has been revolutionary for me, given me quality of life and turned the clock back 12 years. However the dark side of my story was the years preceding the pump. Impulse Control Disorder 😫😫😫😫 If someone doesn't address the patients secret issues and hidden lunacy with dogged determination, left to its own devices it will relentlessly ravage your life until there's nothing NOTHING left to salvage. Your freedom GONE, your relationships GONE, money GONE, sanity and peace of mind GONE. I lost everything apart from my wife, our 4 children and partners plus 3 or 4 close friends who really knew me but moreover believed God for the impossible. I'm trying to say something without saying it, if you understand. Those few years leading up to Duodopa go way beyond my worst nightmare and will NEVER go to print out of sheer respect and honour for family and friends who never gave up on me.
Today I am a changed man fervently struggling to rebuild a marriage that hangs on by a few threads. In summary all I can say is do whatever's necessary and within your power to stay on top of the disorder otherwise if you take your eye of the ball for a moment it will kill you.
All the best

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A MyParki...

Not quite 10 years ago yet. As with most men especially. I have had symptoms for about 12 years just didn’t go to the doctor for a couple years at least. Had DBS in 2019. I was fortunate enough to be able to retire in 2022. Still driving and walking without assistance. The one thing I know is Parkinson’s is such an individual journey. What I mean by that is it how it is different for all of us. Hang there everyone.