That sounds like an excellent schedule. 1 to 2 hours of activity with a 1 to 2 hour nap is 50% work. Allowing 8 hours for sleep he’s working 8 hours a day.

I know I can only handle 1-2 hours for anything. Parkinson’s is hard work all on its own.

Hi there. My husband has PD and has battled some of the same things. What helps him is to stay busy with things that interest him. We live on a farm so there is lots of work to do. Does your hubby have a hobby? That helps to escape for a while. Also I think it helps to have other folks to talk to who understand. Hubby went to a Rock Steady boxing class when we lived in Nashville. It is especially for those battling Parkinsons. It was great exercise and support as well. I pray that things get easier for you both. This is a tough disease for those that have it and those that love them.

That’s one of the reasons that Rock Steady Boxing works so well.

That schedule is in line with my mom's. 2 hours up, 1 hour down is not unusual. But then, neither is 4 hours down, 1 hour up. Or 6 hours up and 0 hours down.

Like Dale Burton said, PD is hard work. I remember one doctor said that PD is like your body forgetting how to do everything it used to do automatically. Trying to do it all consciously (especially if that requires extra-ordinary focus these days) must be exhausting.

Anyway, there's never a magic balance of cheerleading and enabling, or pushing and meeting them where they are.

Don't overthink it. I push my mom and she'll push back when she needs to, one way or another. Giving her something to 'punch' back isn't so bad - emotional boxing for PD!

Thank you for the answer. He goes to RS twice a week when he feels up to it and that does help. He makes wooden bowls on a lathe that he bought a couple of years ago and goes fishing sometimes. We recently moved to Myrtle Beach from our home in PA that had 54 acres so ,yes, there was always something to do. We moved because his health issues aside from PD have become a concern. Will see if therapist helps.