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Now it feels like it's already not working as good as it used to and the muscle stiffness and achiness is almost unbearable some days. My neurologist had put me on it when I complained of feet swelling while on a dopamine agonist patch. She tool me off that and suggested I start the CL
She cancelled my follow up appointments there times so I had to find someone else and can not get in until June. if anyone has this issue and can recommend anything that has helped them, please let me know. I was… read more
Answer Summary
Members shared personal experiences with Carbidopa-Levodopa (C/L) and Sinemet, offering practical insight around managing the medication over... Read more
He started today! I hope this helps him!
I am on Rytary 5x a day. Sometimes it works,, sometimes it doesn’t. There are moments where I crash and I just try to push through. However, the moments with my Rytary is working or amazing. I know some doctors like to keep people off meds until they absolutely need them. In my opinion if they absolutely need them and they waited too long. I’m glad that I can start on a low-dose. I got a little pumped up today. But I feel blessed that this medication can give me some normalcy during my day. Dad should try it. I hope he gets to feel free from his stiffness, it’s wonderful to feel great even if it’s just for an hour.
I was on C/L since my diagnosis. 12 years ago and the only change my neurologist has made in all that time has been in dosage. I recently started seeing a new neurologist and to handle the on and off cycle that I was experienceing, he change my meds to. Rytary and it has evened out my on/off periods. He explained to me that sinemet was develooed in the ’70s while Rytary was developed in the ’80s (a newer and a more effective medication.
Maybe tell him the sinemet is a “supplement “ that you think will help 🤔
Kev try it before you dont like it.
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