Have Been On Levodopa For 11 Years Now And Diskynesia Is Almost Unbearable, Any Suggestions? | MyParkinsonsTeam

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Have Been On Levodopa For 11 Years Now And Diskynesia Is Almost Unbearable, Any Suggestions?
A MyParkinsonsTeam Member asked a question 💭
posted April 3
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A MyParkinsonsTeam Member

I also hope that helps. I have been on it for 12
Years. I never really had a problem with tremors and now i cannot tell if i am having tremors or dysconisia. ???¿

posted April 4
A MyParkinsonsTeam Member

Dr has recommended lowering my dosage as well.. Trying that also. Hopefully it helps.

posted April 3
A MyParkinsonsTeam Member

YOU SHOULD BE TALKING to your own doctor about this – but here is my experience with tremors versus dyskinesia..

I was seeing another specialist in 2019, who noticed that my right hand/arm was shaking; and insisted I see a neurologist immediately. After doing the physical exam, my doctor immediately put me on carbidopa levodopa 25/100 mg two tablets four times a day. And then at night then I was put on 50/200 ER. The difference between tremors and dyskinesia is that tremors are mild shaking of the arm him arm/hand, and dyskinesia is like involuntary dancing of normally the whole upper body. Took about a year and a half for my medication (the 25/100 mgs) to be where they should; be which is one five times a day along with the 50/200 ER at night.

So yes you could be to many but please TALK TO YOUR DOCTOR!!!!!!!

Diane

posted April 9 (edited)
A MyParkinsonsTeam Member

My husband to been on it for over 28 years and diskynesia is bad now and drs. Is recommending cut the doses in half we trying

posted April 3

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