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Since I have had to sleep on the recliner due to back and hip pain, my husband is not aware of my sleep problems. Well, he knows that I have had problems in the past. I find myself trying to hide the fact that sometimes I don't sleep at all
I spend the night on the laptop, playing games or researching articles related to medicine, gardening, and even shopping online. I listen for my husband to get up to go to the bathroom. When I hear the bedroom door creak, I quickly turn off the lamp, close… read more
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Members connected warmly over the question of hiding health changes from caregivers, with most sharing that they, too, downplay symptoms or... Read more
I found it important to let wife and close friends know. I worked with my uncle who had PD and only told his wife. Many of his friends did not understand his not calling or returning calls due to bad memory. He did not see a movement doctor to help him. When he did he discovered every exercise he had chosen did not help his problems. Even his diet was wrong.
For me fighting PD needs a team effort.
I guess that I am a little different to other responses. I let all of my loved ones know when I am having problems. I am really in need of emotional support at times and them knowing what is happening is key to that.
Michael848, I think you have offered a very good insight into dealing with what is very unpredictable. Thank you for your answer.
I think focusing on problems and telling everyone about them could drive friends and people away.
No there's a time to say I need help
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