Sometimes people do not let others know what's happening because it helps them, it is sort of a coping mechanism . If I do not talk about it , it is not happening. It is hard to accept the stuff parkinsons throws at us, sometimes we have to control how much we admit to ourselves is real. We can become overwhelmed quickly with the avalanche of negative things that parkinsons causes us to deal with. It is hard to admit this is our new reality and that it is going to progress in a negative way as time goes by. Most things we experience in life have a start and finish. Parkinsons is different there is no end, a bunch of unknowns and curve balls . One thing is for sure it is challenging to accept and deal with. The constant changes in symptoms and problems makes it super hard to deal with and accept in our own minds ,even before we can worry about how others may feel about it. Accepting our new reality starts within ourselves first and then we can worry about others much better

I found it important to let wife and close friends know. I worked with my uncle who had PD and only told his wife. Many of his friends did not understand his not calling or returning calls due to bad memory. He did not see a movement doctor to help him. When he did he discovered every exercise he had chosen did not help his problems. Even his diet was wrong.

For me fighting PD needs a team effort.

I guess that I am a little different to other responses. I let all of my loved ones know when I am having problems. I am really in need of emotional support at times and them knowing what is happening is key to that.

Michael848, I think you have offered a very good insight into dealing with what is very unpredictable. Thank you for your answer.

I think focusing on problems and telling everyone about them could drive friends and people away.