I agree sometimes you have to make the Dr listen to you and a good Dr will listen if they don't find another dr

I am sorry that you are in the Prescription 7th level of purgatory. I too have been there. I too have Epilepsy. It took years to get the right med to get that under control 🙄 I was 35 when they started. Seven years ago I began having severe pain and so they sent me to a rhumatolagist who gave me alot of cortisone and prednisone...still not working. Then cane the falls, I'm talking ER worthy. My husband and I were now shopping for a sippy cup, the kind that had gripping sides.....I'm not kidding, this was our together time 🙄 This went on for seven years. After spending 2 years of 'is it physical or psychological seizure ' ; I decided to take things into my own hands!! I brought all my test results and x-rays and mri's and ct's and my own research to my neurologist. I presented my case for a Parkinson's diagnosis. She said I didn't have a masked face or a prominent tremor. I am a very animated person which would explain why...I smile a lot! I continued my case. She gave me a prescription for carba/ levodopa. First pill, within 45 minutes there was a noticeable difference. Parkinson's now confirmed. For your own sake do your own research. Do you have trouble turning over in bed, are you constipated all the time, is your blood pressure irregular, do you feel an inner tremor, do you often feel cold or hot when those around you aren't . There is also a finger test that was developed, look that up on line. My point is that that PD has a whole lot of symptoms and not every person gets all the same . Some of them are pretty obscure. Do your own research!! This is your body and you are in it all day every day. The doctor gets 15 minutes. You are in control, you make the rules of how you want your life to be under the circumstances. I am at stage three, I was diagnosed 8 months ago. I had a very serious case of covid two months ago and I am aware of a significant decline...not good 😐 However I am determined to squeeze every drop of life I can!
Now that I wrote this epistle, sorry, I hope this helps 🙏

I, too, have epilepsy and parkinson's. Long ago I decided that I pay for the doctors so they either work with me or I find someone else.

Wow! I went into the hospital for a seizure and came out with Serotonin Syndrome. Was already on c/ll for a confirmed diagnosis, but no one ever picked up on the SS. I was labeled bythe nursing staff as "crazy". I hope you've got someone now who's taking care of the serotonin problem, Vicki400. Many prayers for you. Stay well, and stay off of those serotonin meds!!!❤️

These answers were not helpful. I asked specifically if others have problems holding their head up!