Connect with others who understand.

sign up log in
About MyParkinsonsTeam

Finding a New Normal: Living With Parkinson's

Posted on June 01, 2017

Receiving a Parkinson's diagnosis can inspire both relief and dread. It can be a relief to have a name for the misery that's become part of life. On the other hand, a diagnosis of Parkinson's can be upsetting because it labels us with a problem for which there is no clear cure. Diagnosis is like suddenly falling off a cliff. Abruptly, the life we had before diagnosis vanishes. It’s the beginning of a new life path managing Parkinson's.



Stages of Grief
If diagnosis is like falling off a cliff, then grappling with this new reality is like going through the stages of grief. The concept of the five stages of grief was introduced by Swiss psychiatrist Elisabeth Kübler-Ross in 1969. The stages represent difficult feelings experienced during hardships and traumatic events, such as the death of a loved one, a breakup, or confronting an addiction. Grief is experienced by people who find themselves living with chronic conditions, too.

The five stages of grief are denial, anger, bargaining, depression, and acceptance. The stages rarely happen in order, and many people revisit some or all of the stages over and over after diagnosis.

Anger sets in when we acknowledge what we’ve lost – suddenly there are new realities because of Parkinson's: missing family dinners, worrying about medication schedules, running to endless doctor’s appointments, and losing friends because they don’t understand why we have to cancel plans suddenly. Some days begin with bargaining and trying to live perfectly in hopes that it goes away. The frustration and disappointment in the chronic nature of Parkinson's can lead to depression and sadness.


Relief (The New Normal)
An official diagnosis can be the catalyst we need to move us past denial. Relief slowly begins to creep in when this new normal is shared with others. Social support, from friends and family and from fellow members on MyParkinsonsTeam, helps you slowly climb the staircase of grief into a more predictable plateau – the “new normal.” Forging social support from others with Parkinson's can bring perspective and validation. Walking through life with Parkinson's isn’t easy or what we asked for, but it makes all the difference to walk this new path with others who understand. Have you found your new normal?

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member - Hard way to lose the wt though! I've lost around 15 lbs in a month; though amazingly eating pretty well. Just run things through crockpot until almost mush. And of… read more

posted 2 months ago

hug (4)

Recent articles

More than 1 million people in the United States have been diagnosed with Parkinson’s disease...

Air Pollution and the Risk of Developing Parkinson’s

More than 1 million people in the United States have been diagnosed with Parkinson’s disease...
Tremors are one of the major symptoms of Parkinson’s disease (PD) for many people living with the...

Parkinson’s Tremors: Causes, Types, and Treatments

Tremors are one of the major symptoms of Parkinson’s disease (PD) for many people living with the...
As people age, their risk of falling increases. However, people with Parkinson’s disease...

Improving Balance Issues and Preventing Falls in Parkinson’s

As people age, their risk of falling increases. However, people with Parkinson’s disease...
Early onset Parkinson’s disease (also known as young onset Parkinson’s disease) is a form of...

Early Onset Parkinson’s Disease: Your Guide

Early onset Parkinson’s disease (also known as young onset Parkinson’s disease) is a form of...
People with Parkinson’s disease may be eligible for additional doses of the Pfizer and Moderna...

Are People With Parkinson’s Eligible for Moderna and Johnson & Johnson Booster Shots?

People with Parkinson’s disease may be eligible for additional doses of the Pfizer and Moderna...
Lewy body dementia (LBD) is an umbrella term for two related types of dementia — dementia with...

Lewy Body Dementia: Causes and Symptoms

Lewy body dementia (LBD) is an umbrella term for two related types of dementia — dementia with...
Parkinson’s disease (PD) is a progressive movement disorder that causes symptoms such as...

Deep Brain Stimulation for Parkinson’s: How Does It Work?

Parkinson’s disease (PD) is a progressive movement disorder that causes symptoms such as...
Parkinson’s disease (PD) is more than a disorder of movement and motor function. Cognitive...

Memory Function and Parkinson’s Disease

Parkinson’s disease (PD) is more than a disorder of movement and motor function. Cognitive...
Lewy body dementia (LBD) is an umbrella term for two types of similar dementias: dementia with...

Lewy Body Dementia: Diagnosis and Treatment

Lewy body dementia (LBD) is an umbrella term for two types of similar dementias: dementia with...
The Centers for Disease Control and Prevention (CDC) recommended Pfizer COVID-19 vaccine booster...

COVID-19 Vaccine Boosters and Additional Doses for People With Parkinson's: Current Guidelines

The Centers for Disease Control and Prevention (CDC) recommended Pfizer COVID-19 vaccine booster...
MyParkinsonsTeam My Parkinson's disease Team

Thank you for signing up.

Want more content, community, and support from others living with Parkinson's disease?

Join MyParkinsonsTeam

close