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A MyParkinsonsTeam Member asked a question 💭
May 16, 2024
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A MyParkinsonsTeam Member

Oh sistah!!! You are NOT alone!!!!
Pain was and is my primary complaint. 😪 it's brutal.

May 16, 2024
A MyParkinsonsTeam Member

Are you certain it's Parkinson's related Trujilloles, where exactly is it ? 🤐

May 16, 2024
A MyParkinsonsTeam Member

Phil, I love ya 😉
Just having someone else look at this mess and say WT... This has been one heck of a year. Parkinson's, skin cancer, death of both parents, and a case of covid that dang near killed me but has cracked up my symptoms into what feels like overdrive 🙄 My memory is becoming more of an issue but the thing that really knocked me out was when he bravely said he does see my personality has changed 😭😭😭😭😭😭 Then he says after 46 years I know you pretty well.
I don't know how I can do this Lord

May 17, 2024
A MyParkinsonsTeam Member

Incredible 😮😯

May 17, 2024
A MyParkinsonsTeam Member

I know that women present differently then men. We also make up a mere third of all Parkinson's patients. I also know that when a woman goes to her doctor complaining of pain is almost always going to get a there, there or what i got...well, you have had a few birthdays....( you will be happy to know i did not punch them in the nose). I will be turning 65 next month 😏 They also said that about my fully torn rotator cuff 😖 once my arm was hanging off my body like a tacked on appendage and I begged for an Mri did they finally do one. Surger was scheduled for the next day 🙄
Pain owned every bit of my day. My hips and pelvis were in a vice. Every time I would stand it was like I was standing on the tip of a sword. Lightning pain down my legs was unholy. I would take scalding hot baths with Epson salt. I was taking prednisone and pain meds as well as cortisone shots. I was diagnosed with everything BUT Parkinson's. .....for seven years.
My first dose of carbidopa/levodopa I got up from my chair....on my own....like a real girl 👏🙏👏🙏
My research check out! I was right!!!
God answered my prayers and I FINALLY had the name of this monster and now I fight 🙏 💪

May 17, 2024

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