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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question đź’­
Aiken, SC

I was rushed to the hospital for what appeared to be a stroke. My husband was the one to figure out it was my Parkinson's. Him and 1 lone paramedic. Don't get me wrong, a stroke is Serious!!! KNOW the SIGNS !!! However the level of knowledge in the medical field is sadly lacking. From the importance of medication timing and or medication available. We don't all have a masked face, we don't all have a pronounced tremor, we are all not older men.

July 21, 2024
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Answer Summary

Members rallied around the frustration of how little the medical field knows about Parkinson's disease, with many sharing personal stories of... Read more

Members rallied around the frustration of how little the medical field knows about Parkinson's disease, with many sharing personal stories of being misdiagnosed, receiving little to no guidance after diagnosis, and even having to diagnose themselves before a doctor confirmed it. Several members called for more public awareness campaigns, like PSAs during Parkinson's Awareness Month, and real-time education for hospitals, nurses, and doctors, with some already taking action by volunteering or teaching at local universities. A recurring theme was that this community and its library of resources has become a lifeline for many who feel left behind by the medical system.

A MyParkinsonsTeam Member

There needs to be real-time education of local hospitals and doctors. I'll even volunteer 🙋‍♀️
to start! The medical community needs to have some knowledge beyond, I know Michael J. Fox has it doesn't he??. ( God bless him for all his work) . We need a basic understanding especially in a hospital setting. We could also use a little public information. That can also help with diagnosis. Had i seen a commercial that said Parkinson's isn't only the tremor you saw on your mother's uncle. It's not just a tremor!

July 21, 2024
A MyParkinsonsTeam Member

Our director of rocksteady boxing teaches a class at UAH University of Alabama Huntsville which has a lot of nursing classes and they come to our classes at boxing the older generation was never taught about pd

July 21, 2024
A MyParkinsonsTeam Member

Parkinson’s caused by a stroke is vascular Parkinson’s.

August 2, 2024
A MyParkinsonsTeam Member

The idea of teaching the public about PD has been on the top of my list for some time! I don’t know why we couldn’t have some PSA’s about Parkinson’s that run at times people would actually see them. It’s been done with other diseases like breast cancer, or mental health issues, so why not P.D.???

July 21, 2024
A MyParkinsonsTeam Member

I know strokes can cause Parkinson's symptoms (Vascular Parkinson's). I didn't think the reverse was true.

August 2, 2024

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A MyParkinsonsTeam Member asked a question đź’­
Atlanta, GA