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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Pitman, NJ

I had a DAT Scan. It is a nuclear medicine test. The result was parkinsonism , unspecified type. I know the difference between PD and parkinsonism, but as stated, it doesn't really say much. My Parkinson's specialist said, "Good news"; it's not degenerative." I was so taken aback that the news was good that I looked at the specialist as if he was crazy. I don't understand this . I do well with C/L and on phone with doctor, I mentioned it, and he made a sound that made me think, he was surprised… read more

November 4, 2024
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A MyParkinsonsTeam Member

I had a Dat scan Oct 23rd and results show no Parkinsons. Going to see Neurologist Dec 12th and get some answers hopefully.

November 5, 2024
A MyParkinsonsTeam Member

I would say that the information above is pretty comprehensive. About the only thing I can add is that there are too many approaches to diagnosis and there are too many approaches to treatment. This is based solely on my opinion having had Parkinson’s for 12 years it was mild and I wasn’t actually diagnosed until eight years ago. An example is that I was diagnosed by an excellent movement disorder neurologist that observed me walking across the parking lot to my appointment and noticed that I was not swinging my arms. This and lack of head movement is actually a very significant sign of Parkinson’s. He was not wrong and has been consistent in his treatment of me since then.
It’s frustrating that after decades and millions of dollars spent on research, the only sure finding for Parkinson’s was the introduction of carbidopa levodopa in 1970.

November 4, 2024
A MyParkinsonsTeam Member

I agree Theresa. They are not feeling or experiencing what we are.. I have a lot of experience as a researcher; I think he is right about the vascular parkinsonisnm ;ie "white matter" parkinsonism; I will do what is right for me; . He doesn't seem to know that one-third of pts. with vascular parkinsonisnm do well on L-Dopa, and I am one of them.

December 13, 2024
A MyParkinsonsTeam Member

I have completely lost trust in my neurologist. If not an honest to god movement disorder specialist they don’t really know much. Pretty good at detecting vascular issues and tumors but they have next to no clue when it comes to movement disorders and the associated symptoms, digestive issues, combination of active tremors along with resting tremors. Sensitivity to heat and cold, sleep issues, dorsal column problems. Stay with this site and you will quite quickly know more than your run of the mill neurologist.

November 5, 2024
A MyParkinsonsTeam Member

Years of experience. N° 1 tool no question about it.

November 5, 2024

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