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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 2, 2024
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Answer Summary

Members shared thoughtful perspectives on why people mention their occupations and past accomplishments when discussing their Parkinson's... Read more

Members shared thoughtful perspectives on why people mention their occupations and past accomplishments when discussing their Parkinson's journey, with many agreeing it helps provide context for how the disease has changed their lives. Several members described who they are beyond their diagnosis, emphasizing joy, faith, humor, and love as core parts of their identity even as their bodies have changed. A recurring theme was the importance of having a safe space to express oneself freely, with members encouraging kindness and respect for differing opinions within the community.

A MyParkinsonsTeam Member

I have a 65 year old body ravaged by Adult Onset Epilepsy and late stage Parkinson's that I had to figure out myself because doctors only have 15 minutes to spend per patient. I take 10 different medications 8x a day.
If that was all that you wanted to know than those are my stats but you have NO IDEA who I am.
I am an irreverent joker who is ecstaticly happily married to a wonderful man for over 45 years. We have a wonderful son and DIL. I LOVE life ❀ I've been all over the world and have had wonderful friends! I love dogs and walks in the park. Now I love my personal mobility chair in the park. I almost died from covid in January and February and it has sped up my Parkinson's greatly.
I write. I look at life as a gift....from God. My body is my nemesis but I have my Lord. I have a family, friends and neighbors.
I will never be 5 feet
I will never like math
I don't tolerate mean people or aHats
I will live life as hard and as fast as the Good Lord gives me!
I will love more and laugh more!
I will write more
Thank you Lord for today and I pray πŸ™ for tomorrow.

December 2, 2024
A MyParkinsonsTeam Member

The responses above pretty well sum up the appropriate reasons for mentioning past careers and awards etc This information rpovides a context for current actions. and reasoning.

December 2, 2024
A MyParkinsonsTeam Member

Lani, I believe people who let you know about who they were before PD just want to share there life before and after.

December 9, 2024
A MyParkinsonsTeam Member

Hey Lani, with respect here's my constructive contribution to the conversation. (I was so tempted to let predictive text put constipation but I didn't !)
Precisely who I am today is a man with illness, without occupation and still without qualifications. Yet full of treasure and smiling even laughing with hope in Jesus Christ ! πŸ˜„πŸ˜„πŸ˜„πŸ˜„πŸ˜„

Ain't that the truth.

December 2, 2024
A MyParkinsonsTeam Member

My suggestion is, if you aren't interested, don't read about it.

December 2, 2024

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Asheville, NC