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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Aiken, SC

If one more person tells me how lucky I am that I am not as bad as Michael J. Fox lm gonna hit someone (not literally) And yes I am grateful that he has given his life to the cause and he does suffer from the worst disease l could have....WHY😩🥺 Why do I feel like I have to educate everyone that women Do get Parkinson's and it is different. We get diagnosed significantly later and by then the ship has left and you just have to figure it out yourself. I still remember the comment, you have only… read more

January 17, 2025
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Answer Summary

Members rallied around the question of famous women with Parkinson's, but the deeper theme was frustration over how women are dismissed,... Read more

Members rallied around the question of famous women with Parkinson's, but the deeper theme was frustration over how women are dismissed, misdiagnosed for years, and constantly compared to Michael J. Fox as if their experience doesn't count. Several members shared personal struggles including delayed diagnoses spanning nearly a decade, a long list of daily medications, balance issues, and the pain of losing touch with friends who seem to treat PD as contagious. A recurring theme was the urgent call to raise awareness that Parkinson's affects women differently, paired with heartfelt community support and shared determination to keep living fully.

A MyParkinsonsTeam Member

Linda Ronstadt was originally diagnosed with Parkinson's, but later was told it is PSP, another Parkinsonism. It took away her ability to sing.

January 17, 2025
A MyParkinsonsTeam Member

It’s hard because we mostly look the same on the outside, so I find that people I know who are aware of my diagnosis will comment that I look good, not sick. I’m glad I don’t look how I feel inside! My laughing comment to them is usually suggesting that they work hard on their upper body strength so they can push me uphill if I’m ever confined to a wheelchair!

January 17, 2025
A MyParkinsonsTeam Member

I actually think that all premed students need to shadow those Drs who are known to be compassionate and willing to listen. I am fortunate to have an incredible Dr right now who is also teaching. He looks you in the eye instead of typing on his computer and ignores how long he may need to spend with each patient. He has even called me at home after hours to see how I was doing. This is what the medical field needs. My nephew is currently in his first year of pre-med and I have emphasized to him how important true communication really is.
🌈TheaD

January 20, 2025
A MyParkinsonsTeam Member

Melissa I think it’s that way for most chronic illnesses. When I was in a lupus support group most women had waited years to be diagnosed. I was so fortunate to have a family Dr that was an excellent diagnostician and it only took 3 visits and a simple blood test to confirm. Most Drs think everything is all in a woman’s imagination.They need better training on listening skills and less attitude of knowing it all!
🌈TheaD

January 19, 2025
A MyParkinsonsTeam Member

I love you TeresaBaker3 🥰
If .,,....WHeN I get the long threatened book written.., your name will be in the thanks to chapter ☺️

January 19, 2025

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