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Diagnosed 8 years ago, but knew before being diagnosed. Upon learning the various symptoms associated with Parkinson's I have begun wondering if my symptoms have always been present - maybe even since childhood. For instance, my sense of smell has always been suspect, if not always non-existent. Current symptoms are left side dominant and I have always felt my left side has been weaker (or just "different").
Anyone else give this thought and do a deep dive into their symptoms?

February 13, 2025
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A MyParkinsonsTeam Member

Hi there, I was diagnosed in 2016 with YOPD but like you, I knew something was off many years prior. Like you the PD impacts my left side only - even now. I do find that the levadopa combined with quite a lot of exercise has oddly improved ( at least for now) my worst symptoms.

February 15, 2025
A MyParkinsonsTeam Member

I think I was born to have PD. I don’t think I’ve always had it, but I’ve never been “quite right” either.

February 14, 2025 (edited)
A MyParkinsonsTeam Member

Hi All! I've finally found people who can relate! I was diagnosed with YOPD in 2017, but I feel like I had pre-symptoms since 2001 - slowing movements, cramped chicken-scratch handwriting, unexplained muscle and joint pain, balance issues. I was told my issues were everything from psychosomatic to the flu to depression. I was happy in 2017 (after the initial shock) when I finally had a diagnosis. I've been learning all I can since then, and had DBS in 2022. I'm now struggling with other issues not addressed by DBS but related to YOPD.

October 26, 2025

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