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A MyParkinsonsTeam Member asked a question 💭
Melbourne, AU
March 25, 2025
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Answer Summary

Members reflected on the question of embracing mortality and planning for it, with many sharing that practical preparation has brought them... Read more

Members reflected on the question of embracing mortality and planning for it, with many sharing that practical preparation has brought them peace of mind rather than fear. Several members described steps they have taken, including updating wills, setting up transfer-on-death titles, organizing account details for executors, and registering as organ donors to leave a lasting gift. A recurring theme was the importance of not burdening loved ones with legal or financial chaos, and many also touched on the desire for dignity and personal choice at the end of life.

A MyParkinsonsTeam Member

Having Parkinson's doesn't increase your risk of dying any more than walking out the door of your home does. It could happen to any one of us at any time from hundreds of different causes. For us, we made sure that all our financials and legal papers were in place. Notarized will, transfer titles on death for cars, house, etc, a log that provides all our accounts and access details for our Executor to handle all the things that need to be done when we leave this world. The real challenge is to update it at least once yearly as things change, such as accounts, passwords, etc. We don't want to burden our loved ones with going on a treasure hunt trying to figure out what is out there that needs to be addressed. It took 3 years for my cousins to uncover all the accounts that my Uncle had opened in various banks and accounts and to get the estate probated to be able to sell the house because there was no will. Why make our family go through that? We would rather they be mourning our absence because they loved us, not cursing us because of the legal drama we left them with.

March 25, 2025
A MyParkinsonsTeam Member

We are, indeed, Lori and MPT admins. But I have a pre-paid burial, a will, and a deep desire to die BEFORE i develop the seemingly inevitable (unless you have a fall that kills you) Alzheimer's. I won't go as a veg. I'm going to advocate this state (CT) for "Die with Dignity" or another Physician-assisted S. The S-word gets you an email from admin.

March 25, 2025
A MyParkinsonsTeam Member

When my time comes, I just want to be on the best ketamine high so I can go with a smile.

April 8, 2025
A MyParkinsonsTeam Member

Perhaps the focus should be on the quality of life between today and when you die

March 26, 2025
A MyParkinsonsTeam Member

I can I will my indebted life style hugs 🫂 Carol

March 27, 2025

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