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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 3, 2025
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Answer Summary

Members responded with great empathy to the question about memory loss after a Parkinson's diagnosis, with nearly everyone confirming they... Read more

Members responded with great empathy to the question about memory loss after a Parkinson's diagnosis, with nearly everyone confirming they experience short-term memory loss that is progressing over time. Several members shared practical coping strategies including writing notes, setting descriptive alarms, taking pictures, using Google Maps for familiar routes, and leaning heavily on caregivers or spouses to help track appointments and medications. A recurring theme was finding humor and grace in the struggle, with many members also mentioning brain fog, slow decision-making, and the emotional weight of watching cognitive function decline.

A MyParkinsonsTeam Member

A quick update: unfortunately my memory is slowly getting worse, and I'm still waiting for the results of my CT scan from March. It's getting to the point where I need to use Google Maps just to go places that I normally drive to in my sleep (and yes- Google lady and I still don't get along. LoL). Fortunately I still have my sense of humor to keep me sane. I'm also waiting for Medicare to approve a referral for a DAT scan (should have been submitted back in July).

August 11
A MyParkinsonsTeam Member

I am so happy that you have such a wonderful caregiver. I don’t know what I would do without my husband. I can’t tell you how many times my husband tells me a day that I am being wobble. I need reminders to walk straight and walk with a purpose. I tend to lean down and my feet start going fast. My memory has gotten so bad that I can read something a five minutes later I don’t know what I read. When I can I help my husband cook. He has been my caregiver for so many years and I’m sure things will not always be like it is now but I thank God for what I can do today. Just one day at time is my new motto. Praying you have a wonderful rest of the week.🙂

August 13
A MyParkinsonsTeam Member

My short term memory is gone. I don't drive anymore. My wife takes me to my appointments I call her my hard drive. She can remember what the Dr.s say. She does more talking than I do. Sometimes I think I could send her and I stay home. She keeps My medicines right. I feel bad because everything has been dumped on her. I get dizzy a lot and my balance is off.. I kinda can't do anything. I'm better in the morning but when I get tired I stumble to much. We're still trying to get my meds balanced. I also struggle with depression and working on those meds also. I have woke up and actually fell like getting out of the bed. Cooked breakfast one morning.

August 12
A MyParkinsonsTeam Member

I forget everything, clocks & calendars don't seem to matter much. I set alarms that say " go to work" or "go home".

June 17, 2025
A MyParkinsonsTeam Member

I forget what I’m talking about mid-sentence.

June 17, 2025

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