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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone else have this issue?

A MyParkinsonsTeam Member asked a question 💭
Elkins, WV

My SI Joints are getting so tight that I can’t walk.
I can’t even stand without holding onto my roller walker.
I can feel its in my hip joints.
Then it will go away but I will still have to use my roller walker to balance.
I have lupus of the skin and have a few spots on my elbows and hand.
Stress and sunlight and inflammation will cause an outbreak.
Can inflammation get to the point where it can affect your walking?

May 1, 2025
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Reactions
A MyParkinsonsTeam Member

It seems like my right hip is the epicenter of my tremors. It gets super tight and makes walking difficult. Stretches for SI can help. Mine is much better during "on times."

May 2, 2025
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member it’s Lupus but only affects the skin.
SI joints are in your lower back by the hips. They are affected by Parkinson’s.
If you put your hands on your hips and move your thumb to your back, that’s where it’s tight.

May 6, 2025
A MyParkinsonsTeam Member

I never heard of lupus on the skin and I do not know what SI means. It sounds like you are taking good care of yourself having the rollator....best wishes for the best day possible.

May 2, 2025
MyParkinsonsTeam

Balance and walking difficulties are common challenges with Parkinson's disease. Using a walker is not a sign of weakness - it's actually a smart tool for maintaining independence and safety. Many MyParkinsonsTeam members report that accepting and using a walker has significantly reduced their falls and improved their Show Full Answer

Balance and walking difficulties are common challenges with Parkinson's disease. Using a walker is not a sign of weakness - it's actually a smart tool for maintaining independence and safety. Many MyParkinsonsTeam members report that accepting and using a walker has significantly reduced their falls and improved their ability to walk longer distances. To help maintain balance and mobility, try these techniques:
- Practice swinging both arms while walking
- Walk to a rhythmic beat (like music)
- Consciously lift your feet while walking
- Use a "U" shape technique for turning instead of sharp pivots
- Focus on one movement at a time
- Move slowly when changing positions, counting to 15 between movements

Remember to have someone nearby when practicing these techniques, especially at first, and always keep a sturdy support within reach. It's important to maintain patience with yourself as symptoms fluctuate. As one MyParkinsonsTeam member wisely shared, "What's the hurry!" Taking your time and practicing self-care can help manage challenging moments. Consider working with your healthcare provider to develop strategies for managing your specific mobility challenges.

May 1, 2025

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