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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question đź’­
Stoke-on-Trent, UK

I'm watching the UK Commons debate on the introduction of an Assisted Dying law.

I'd like to ask them how many of them have a terminal illness? It's all very well to say we need to fix problems with the NHS and better palliative care and in principle we should. But we've been made the same promise in that regard for fifty years.

We need this law out of simple fairness. Currently someone can make the decision that despite their pain and suffering, they choose to live.

Simple balance requires… read more

June 20, 2025
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Answer Summary

Members responded to a post about the UK's Assisted Dying bill passing in Parliament, sharing personal reflections on what the vote means for... Read more

Members responded to a post about the UK's Assisted Dying bill passing in Parliament, sharing personal reflections on what the vote means for people living with conditions like Parkinson's, which does not qualify under the current law. Several members noted the bill is a limited but meaningful first step, with hope that future updates will expand eligibility, while others shared their own end-of-life planning through advanced directives and no-resuscitation clauses. A recurring theme was the deep tension between personal autonomy and religious belief, with many members expressing respect for differing views while firmly supporting the right of individuals to make their own choices about death and suffering.

A MyParkinsonsTeam Member

Jess Asato now inventing imagined cases of whatiffery. She says it's the old and disabled who will most likely use an assisted dying service, as if they are being coerced.

But of course, the young and healthy don't need to end their lives to end the pain.

What an asinine argument.

June 20, 2025
A MyParkinsonsTeam Member

Re "the slippery slope".

I view it as the first step on the ladder. This bill even if passed, would not permit me to take advantage of it. Parkinson's is not a terminal disease and this bill requires diagnosis of such.

It also requires you to demonstrate full mental capacity, and since dementia is closely associated with Parkinson's, I'm unlikely to tick that box either.

Lastly you need to be six months from death, and I can almost guarantee if passed, the bureaucracy will take at least that to complete the forms.

So it's weak, won't help me and won't work for most
But it's SOMETHING. It's the principle of giving control back to the individual.

June 20, 2025
A MyParkinsonsTeam Member

Clippy...

June 20, 2025
A MyParkinsonsTeam Member

I found myself to often annoyed by AI's knee jerk reaction to the S-word (which actually in the UK is NOT illegal, but it is illegal to assist, though the cogs of society act as though it was).
AI mirrored those cogs too closely and increasingly reminded me of Microsoft's "Clippy".

"Hi! It looks like you're talking about a Chop Suey Side. Would you like me to talk you out of it?"

Like AI, Cliopy's advice got old quick and showed no sign of learning.

June 20, 2025
A MyParkinsonsTeam Member

I will not decide when I want to die. That is God's decision.

June 23, 2025
Hi, this is just a check-in, based on a phrase you mentioned. If you — or anyone else who sees this — is thinking about self-harm, we want to say that you are an important part of this community. No part of this is easy, but there is support that can help. Read more >

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