Hello! I hope you are doing well Jenny. Not my Dr thinks I don’t have MSA but a combination of long covid and Parkinson’s. My DaTscan came out normal and my MRI did not show the hot cross buns sign of MSA. But I have had long covid since the end of 2022. Out send to have gotten a lot worse lately. But that’s where they think the autonomic dysfunction is coming from. I’m waiting for my skin biopsy to come back before they know for sure. I had it Sept 3rd and it takes 28 days to process. I’m expecting results at the beginning of next month. Sending you big gentle hugs!

I feel you. I have a granddaughter and that’s pretty much keeping me going. I just got told to take early retirement and can’t go back to work (I am a teacher) until I have a doctor’s note saying I can do my job.

Hi Jenny. I’m 55 and I was just diagnosed Jan 29, 2025. My Dr told me two weeks ago that I probably have atypical Parkinsonism. So not knowing anything about PD , I looked it up. It seems to be a perfect match for me.. Now I know why they kept saying I have a complex case. My symptoms don’t fit that well anymore for just PD. But EVERYTHING makes sense if that is my diagnosis. It’s progressing rapidly for me and most days the pain is severe but I’m hanging in there. I hope we both don’t have that but I’m going to do my best to make everyday the best I can. I’m also finding humor to be a friend of mine. I love to laugh and allowing myself to do that as much as I can has helped immensely. I spend as much time as I can with my grandbabies! They make me laugh and it brings me joy. Gentle hugs.

Deanna