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Some days even after taking my l/c I tremble violently how do you control it when it happens to you? 🤔
Amazon has great tools to help with Parkinson's...they have weighted utensils for eating, weighted cooking utensils. weighted plates with curved edges for food assist, adult bibs, weighted fingerless gloves to stabilize your hands while writing/typing/using the mouse, weighted pens. Just to name a few...search Parkinson's Disease Assistive Devices and scroll through till you find what appeals to you and meets your needs.
@A MyParkinsonsTeam Member, It amazes me that weighted things help when Parkinson's makes everything seem heavier as it is.
I took C/L for about 4 months until I did more research and found it is common to need larger doses as time goes on and that the side effects can be worse than the tremors. Look up WebMD What Is Dyskinesia in Parkinson's Disease.
After doing more research with holistic approaches, I chose to use velvet bean AKA. Mucuna Pruiens. I currently take 3,000 mg in the morning and sometimes in the afternoon if I have an event to go to. It takes about an hour to kick in and last for about 3 hours, but sometimes the rest of the day. It does not stop the tremors but calms them. If I get in any kind of stress, the tremors get much worse no matter what. There are side effects as well when taking very large quantities. I am following Nicole Apelian. Look her up.
The routine, dosage and schedule are much more fragile with c/l. Nothing stops Parkinson's, only addresses its symptoms. I have ups and downs and different symptoms that I deal with as they come. I try to stay on a routine to help alleviate the symptoms before they come. I have not found anything for the fatigue, so I take a nap or rest on those days.
Amazon- nutricost -organic mucuna pruiens-powder - unflavored -8.9 Oz. I currently take one teaspoon which is approximately 3,000 mg. The scoops that come with it are tiny and are 500 mg each. It has to be mixed with a blender. I purchased a little hand blender {YUSKOW YW-218) on Amazon that is rechargeable. It lasts over a week before I have to recharge it. I use it for all my herbs and supplements. I cannot swallow capsules so I break them all into about a half a cup of organic coconut water Plus one packet of Emergen-C. I get it from Costco.
@A MyParkinsonsTeam Member where do you get velvet beans aka mucuna pruins
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