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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 17, 2025
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A MyParkinsonsTeam Member

The issue that concerns me about supplements is that they are not regulated. Many come from China. That means you don't know what is in them, how strong a dose, what filler agents, the purity of the product or the cleanliness of the place it was processed. No oversight.

September 17, 2025
A MyParkinsonsTeam Member

No I have not.

September 23, 2025
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, You are correct. I think that the medications and supplements seem to help patients with Parkinson's that was triggered by exposure to chemicals more than from other causes. Mine is genetic based. I have been stiff and slow since I was little. My mother always said that I was "slower than molasses in January." I could read before I started kindergarten, but I had to take Summer School because I couldn't jump rope. My mom and my grandma decided to enroll me into a ballet/tap dance/acrobatic class when I was 8. I didn't do well in any area. The instructor was determined to teach me how to do a backbend. I was in a harness that came down from the ceiling, plus she was standing in front of me with her arms around me, supporting my back. I will remember her words till the day I die, "You have the stiffest back of any 8-year-old I've ever known." All my teachers said that I wasn't trying hard enough. I've dealt with being constipated all my life as well. I'm just glad that I finally have an answer for why I've been slow all my life. Myhusband, @A MyParkinsonsTeam Member never fusses at me. He has always recognized how hard I try to be quick and efficient, even before the diagnosis of Attenuated MPS III which has now developed into Parkinson's. Until Rytary, nothing helped, but it simply slows down the regression (I refuse to call it "progress" which denotes a positive accomplishment.) Parkinson's will eventually take me back to the developmental stage doing nothing but to lay in fetal position and sleep around the clock, if I live so long. Until then, I've got some living yet to do.

September 18, 2025
A MyParkinsonsTeam Member

I tried the mucuna prurien too!! Made my dyskinesia way more intense! After more reading found it's used for lowering blood sugar too, which I can not do ... I already have very low blood sugar, that could've been my issue with it!!! I am a huge supplement and nutrition fan for all health issues and I've heard great results with the mucuna ... like many things in life, do a lot of research before jumping in, best of luck!!!!

September 18, 2025
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, I thank God for the research that has brought about Rytary because I can't take straight C/L or Sinemet, even the time-released form.

September 18, 2025

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