MyParkinsonsTeam

How can you help your dad who may have dementia with Lewy bodies, and what should you ask his neurologist?

The symptoms you're describing—fluctuating memory and attention, anger when he can't remember, hearing voices (hallucinations), and movement difficulties—are consistent with Lewy body dementia. It's understandable Show Full Answer

How can you help your dad who may have dementia with Lewy bodies, and what should you ask his neurologist?

The symptoms you're describing—fluctuating memory and attention, anger when he can't remember, hearing voices (hallucinations), and movement difficulties—are consistent with Lewy body dementia. It's understandable that caring for him became too much, and a nursing home can provide the specialized care he needs.

Questions to ask his neurologist:

- Has dementia with Lewy bodies been officially diagnosed, or should testing be done to confirm?
- What medications might help with his memory, attention, and hallucinations?
- Are there specific medications he should avoid due to sensitivity common in Lewy body dementia?
- What about his REM sleep behavior disorder (if he acts out dreams)?
- Are there nonmedical therapies that could improve his quality of life?

How you can help:

- Visit regularly and engage him in familiar activities or music he enjoys
- Be patient during his "off" days when memory and attention are worse
- Work with the nursing home staff to ensure they understand Lewy body dementia's unique needs
- Ask about physical therapy to help maintain whatever mobility he has left
- Consider cognitive behavioral therapy or other supportive therapies

The fluctuating symptoms you're seeing—good days and bad days—are a hallmark of this condition.

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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