Anne what do you take 6 times a day please?
November 11, 2025
Yes, many people with Parkinson's experience challenging "off" times when medication effectiveness decreases. These periods can significantly impact daily life and vary widely between individuals.
MyParkinsonsTeam members report various symptoms during "off" times:
* Severe gait problems and dragging legs
* Return of Show Full Answer
Yes, many people with Parkinson's experience challenging "off" times when medication effectiveness decreases. These periods can significantly impact daily life and vary widely between individuals.
MyParkinsonsTeam members report various symptoms during "off" times:
* Severe gait problems and dragging legs
* Return of tremors and muscle stiffness
* Extreme fatigue and shortness of breath
* Difficulty moving at all
* Balance issues
* Muscle pain
* Toe curling
* Facial squinting or tics
* Difficulty talking
* Urinary incontinence
One member described their experience: "My gait gets really bad, hand tremor returns, and tics in my legs keep me from sleeping." Another shared, "The medicine wears off and I can't move."
The good news is that "off" time can be managed. Some members have found relief through medication adjustments, while others celebrate days without "off" periods as particularly good days. Working with your doctor to optimize your medication schedule and exploring different management strategies can help minimize these difficult periods.
You're not alone in this experience - it's a common challenge that many in the Parkinson's community navigate together.
November 11, 2025