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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭

My husband was diagnosed in 2017

November 22, 2025
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A MyParkinsonsTeam Member

My husband was diagnosed 6 years ago but had symptoms we ignored for several years before that. His symptoms are much the same as when he was diagnosed, just a little worse. He is just slower, takes smaller steps, and has less energy. He was basically stage 3 when diagnosed and still there. He is 86 so some of that is age, not Parkinson's.

November 22, 2025
A MyParkinsonsTeam Member

That’s exactly what my husband does. He’s having a lot of frustration with excessive mucus and mild dysphasia. At this stage , what helps you the most either treatments or family support??

November 24, 2025
A MyParkinsonsTeam Member

At 72 and 8 years since officially diagnosed, I’ve been hovering from a 3 to 3.5. Some symptoms relax a while, others increase. It’s like a roller coaster, high, low; fast, slow; twisting, smooth. It’s exhausting to constantly be challenged.

November 24, 2025
MyParkinsonsTeam

What symptoms do people experience after nine years with Parkinson's?

Parkinson's affects everyone differently, and there's no single timeline for how symptoms progress. Some members who've had Parkinson's for many years continue to live very active lives, while others face more challenges.

One member diagnosed over 20 Show Full Answer

What symptoms do people experience after nine years with Parkinson's?

Parkinson's affects everyone differently, and there's no single timeline for how symptoms progress. Some members who've had Parkinson's for many years continue to live very active lives, while others face more challenges.

One member diagnosed over 20 years ago shared they're still living a full, active life. They emphasized taking it one step at a time and staying engaged with exercise, walking, singing, and talking to others.

Common challenges that may develop over time include:
- Tremors (though not everyone experiences severe ones)
- Stiffness and muscle rigidity
- Slowed movements
- Balance issues
- Involuntary movements
- Finger clenching or foot and leg twisting
- Cognitive changes (though not everyone experiences these)
- Fatigue and exhaustion
- Mood changes or behavioral shifts

The key is staying active and fighting back through movement and engagement. Some days are harder than others, but many find ways to adapt and manage their symptoms through trial and error.

Remember, your husband's experience may be quite different from others at the same stage. Finding what works specifically for him through communication with his neurologist is essential.

November 22, 2025

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