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I thought it might be from the Entacapone I was taking because I started that around the same time, so I stopped it for a few months but that just made my off time worse. The other thing that happens occasionally on my off times is I get really bad shaking, like having chills but not being cold, as well as sometimes painful muscle contractions in my arms and legs. These episodes are terrible and thankfully so far don’t happen too often, but the underlying feeling that my body is not turning off… read more
Me too, about 40 pounds lost in a couple years with majority of it this past year since the dyskinesia has worsened ... no real rest for the body, never relaxing is wearing me out!! I do my best to exercise and eat but everything feels like a struggle!!!
Thanks for your reply, it’s helpful knowing I’m not the only one. I’m still hoping to find the magic trick to turn off my body so I can get some rest.
I don't understand it either. Not long after my diagnosis, I went from 168 to 134 in about three months. I lost so much muscle so quickly I could hardly carry my weight. Starting a workout program was a real job.
The doctor told me my weight loss was because my muscles were always tight and twitching. I managed to get my weight back up to about 147, where I am now and I work out almost every day. without losing any weight. I guess it's just part of PD.
Have you experienced weight loss with Parkinson's disease?
Yes, weight loss is a real concern many MyParkinsonsTeam members face, and your observation about constant movement burning calories is spot-on.
Why Weight Loss Happens
Dyskinesia, which causes involuntary movements like twitching, jerking, and writhing, can lead Show Full Answer
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