Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Long Island, NY
February 16
 · 
Reactions
A MyParkinsonsTeam Member

I only take 3 sinemet a day or it starts dystopia movement.

February 19
A MyParkinsonsTeam Member

Queendianac, I take carbidopa also every two hours and take it 11 times a day starting when I get up 6:30 am to 12;30 am when I go to bed. I have been doing this for years. Bean

February 18
MyParkinsonsTeam

Are you concerned about taking too much Sinemet with your current dosing schedule?

Taking Sinemet (levodopa) every two hours is not uncommon for managing Parkinson's symptoms, but the right dosage varies greatly from person to person. Some people need frequent doses to maintain steady symptom control throughout the day.

Show Full Answer

Are you concerned about taking too much Sinemet with your current dosing schedule?

Taking Sinemet (levodopa) every two hours is not uncommon for managing Parkinson's symptoms, but the right dosage varies greatly from person to person. Some people need frequent doses to maintain steady symptom control throughout the day.

However, it's important to work closely with your doctor to find the right balance. Taking levodopa too frequently or at high doses can sometimes lead to side effects like dyskinesia (involuntary movements that look fluid and dance-like, different from tremors).

Here are some signs to discuss with your doctor:

- Experiencing involuntary, writhing movements when your medication is working best
- Noticing your symptoms fluctuate significantly between doses
- Feeling like your medication wears off before your next dose
- Having trouble with weight loss or constant movement

Your doctor may suggest adjusting your dosing schedule, changing the timing of doses, or exploring other medication options to help smooth out symptom control. Never adjust your medication schedule without consulting your healthcare team first, as they can help you find the most effective and safe approach for your specific situation.

February 16
A MyParkinsonsTeam Member

How many total pills are you taking? Do you have side-effects like dyskinesia or hallucinations? My husband is taking 900 mg. per day, while his brother is up to 1200 mg. per day. So far that seems to be working, after 6 years on the meds.

February 16
A MyParkinsonsTeam Member

@Queenduanac, I believe that I've seen more than one Team member state that they are better off without Sinemet or any Carbodopa/Levadopa medicines. Rytary is the only medication I have been able to tolerate. Without it, I am serious trouble quickly. Talk to your doctor about how you're feeling.

February 16

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Long Island, NY

A MyParkinsonsTeam Member asked a question 💭
Long Island, NY

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In