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Parkinsonism symptoms. Can they come back after two year diagnosis

A MyParkinsonsTeam Member asked a question 💭
Newington, CT

OH is the most debilitating symptom for me right now

March 19
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A MyParkinsonsTeam Member

Thanks Dawn

March 20
A MyParkinsonsTeam Member

Sooo many factors, everything is sooo different all the time for everyone at different times!!! Short answer, is sure they can come back ... the complicated answer comes from your habits, location (weather and or stress), diet, sleep, activity level and these are things only you can answer!!! Maybe journal those aspects for awhile and maybe the explanation will come to light!!! Random thoughts on this can be ... do you eat protein to close to taking medications, are you still trying to be a super hero at work or home like you think you should be able to do, or are you sooo down you don't barely move anymore, could you need to increase medications, etc.... best of luck, I am praying for you 🙏 💞

March 19
MyParkinsonsTeam

Can Parkinson's symptoms return or worsen after a two-year diagnosis, and how does orthostatic hypotension (OH) affect you?

Yes, Parkinson's symptoms can definitely return or worsen over time, even after your initial diagnosis. The disease progresses differently for everyone, but it's common for symptoms to change as time Show Full Answer

Can Parkinson's symptoms return or worsen after a two-year diagnosis, and how does orthostatic hypotension (OH) affect you?

Yes, Parkinson's symptoms can definitely return or worsen over time, even after your initial diagnosis. The disease progresses differently for everyone, but it's common for symptoms to change as time goes on.

As Parkinson's advances, you may experience what's called "off" time - when symptoms return between medication doses. This happens because the disease causes more damage to brain cells over time, making medications less effective or wear off more quickly.

Orthostatic hypotension (low blood pressure when standing) is a recognized nonmotor symptom of Parkinson's that can be particularly challenging. It can cause dizziness, lightheadedness, and even fainting, which understandably makes daily activities difficult.

Here are some things that might help with OH:

* Talk to your doctor about adjusting medication timing or doses
* Stay well-hydrated throughout the day
* Rise slowly from sitting or lying positions
* Consider compression stockings
* Increase salt intake if your doctor approves

Since OH is significantly impacting your quality of life, it's important to discuss this with your care team. They may adjust your Parkinson's medications or add treatments specifically for blood pressure management.

March 19

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