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Has anyone else experienced this issue before? And if so how do you handle it.

March 25
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MyParkinsonsTeam

How can you help your father who's experiencing hallucinations and paranoia but refuses to see a doctor?

Yes, other MyParkinsonsTeam members have faced similar challenges. One member shared: "My husband has PD dementia. He suffers from delusions and some paranoia. He believes the delusion so strongly that it keeps him Show Full Answer

How can you help your father who's experiencing hallucinations and paranoia but refuses to see a doctor?

Yes, other MyParkinsonsTeam members have faced similar challenges. One member shared: "My husband has PD dementia. He suffers from delusions and some paranoia. He believes the delusion so strongly that it keeps him stressed."

The trust issue and doctor refusal are particularly difficult. Here are some approaches that have helped others:

Stay calm and don't argue. Challenging his reality or trying to convince him the hallucinations aren't real usually makes things worse. Instead, offer reassuring words that he's safe.

Validate his feelings. One father with Parkinson's wanted validation that he wasn't insane and that hallucinations were part of his condition. He needed patience and understanding that these episodes were temporary.

Try distraction techniques. If he's experiencing paranoia or hallucinations, gently redirect his attention to a different room or activity rather than confronting what he's experiencing.

Keep the environment well-lit. Visual hallucinations often occur in low light, so keeping lights on may help reduce their frequency.

Regarding the doctor visit: This is crucial because medication adjustments can often resolve or significantly reduce hallucinations. One caregiver discovered their father's neurologist had never adjusted his [[treatment:Levodopa/Carbidopa:55d534f51fcaa397470006dd]] as the disease progressed, which contributed to his symptoms. After finally talking to the doctor and adjusting medication, the hallucinations improved dramatically.

Could you frame the doctor visit around medication management rather than the hallucinations themselves? Sometimes approaching it as a routine check-up feels less threatening.

March 25

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