Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Tampa, FL

I dont know if this is a parkinson problem but the bottom, ball of my feet and back of my toes is extremely hot. It is worse at night after walking all day, The only thing that relieves it is a cool foot bath but that only lasts an hour or so. Anyone hear of this or experience this?? Bean

April 17
 · 
Reactions

Answer Summary

Members rallied around a question about burning or hot feet with Parkinson's, with many sharing that they experience the same issue and have... Read more

Members rallied around a question about burning or hot feet with Parkinson's, with many sharing that they experience the same issue and have found relief through cool foot baths, ice water, fans, and sleeping with legs uncovered. Several members offered practical suggestions including reducing salt, increasing water intake, wearing comfortable shoes, and looking into gabapentin or magnesium glycinate for nerve pain. A recurring theme was the connection between long-term carbidopa levodopa use and vitamin B6 and B12 deficiencies as a possible cause of neuropathy, with strong encouragement to bring this up with doctors.

A MyParkinsonsTeam Member

Since I spoke with my doctor (parkinson doctor) and he never mentioned this problem I researched it a little. I found out that after using carbidopa levodopa for an extended period of time you can wind up with vitamin B6 and vitamin B 12 deficiences which can lead to neuropathy. I have been taking carbi for 21 years so I am going to have my doctor check to see if I have a vitamin B6, 12 deficiency. Then I can proceed from there. Thought this was an interesting fact and am wondering why my parkinson doctor did not tell me what caused the hot feet.

April 19
A MyParkinsonsTeam Member

Hi Bean, I don't know if foot problems are a per-say parkinson's symptom. But I do believe it can be a result of having parkinson's disease. If you do as much twisting as I do from diskinias. And my feet are constantly moving. I walk on the outside of both of my feet. I have fractured the outside bone many times. They told me it's a crack, horizontally, not a break. Like a chicken bone if smashed, they splinter. i have been told there is nothing they can do. However, my left foot is becoming wider than my right foot, separating between my big toe and my second toe. So I guess I'm saying I don't know if it's a symptom or the result of the parkinson.

April 17
A MyParkinsonsTeam Member

Thank you everyone for your responses to my foot problem. I just heard from my doctor and he said it was foot neuropathy and I would have to see a neurologist for that. I told him I thought he was a neurologist but he said only for parkinson So it is more doctors for me! Hate these diseases!! Bean

April 17
A MyParkinsonsTeam Member

Hi Bean,
Yes, I have had burning in both my feet. It started several years back. Mine are almost totally numb. But, yours may never reach this level. You know PD affects us all in different ways and the same in others. I do think your team of doctors need to be aware.
I do like BarbaraRb’s advice, as well. Moreover, choose comfortable shoes that feel good to you. Your nerves will let you know what shape and brands work best. I would rather have a small bit of pain every once in a while, just to show me they’re not becoming numb.
Here’s wishing you all the best!

April 17
A MyParkinsonsTeam Member

sleep with your feet outside of the duvet, keeps them cooler, generally sleep better! :)

September 1

Related Questions

View All
A MyParkinsonsTeam Member asked a question 💭
Southbury, CT

A MyParkinsonsTeam Member asked a question 💭
Turlock, CA