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A MyParkinsonsTeam Member asked a question 💭
Gloucester Point, VA

Is there anyone treating their parkinson without drugs successfully? If so how?people are telling me I had no noticable symptoms until I started sinimet and actually I agree!

April 18
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Answer Summary

Members discussed managing Parkinson's without levodopa/carbidopa, sharing a wide range of personal strategies and experiences. Several... Read more

Members discussed managing Parkinson's without levodopa/carbidopa, sharing a wide range of personal strategies and experiences. Several members described using supplements like mucuna pruriens and ashwagandha, Botox injections, the Cala watch (a neurologist-prescribed wearable that reduces tremors), and consistent exercise like mall walking to maintain quality of life. A pharmacist living with Parkinson's offered thoughtful insight, encouraging members to advocate for personalized care and noting that those who actively participate in their treatment tend to do best.

A MyParkinsonsTeam Member

I took carbidopa levodopa for 4 months and did not notice any difference. During that time I did research and found that a large number of people eventually have movement side effects that are worse than the tremors. I do not take any medication. I take tinctures and supplements for the brain, arthritis, digestion, constipation and anxiety. I exercise for strength, balance and general movement. I took mucuna pruiens AKA velvet bean for about a year. It calmed but did not alleviate my tremors. I started in tiny doses and built up to the suggested higher doses. I caught a flu and stopped taking everything for about a week (last September). When I began taking it again, I started with the higher doses but it made me very sick, vomiting and diarrhea. I have not started it again. I am just dealing with the tremors but know that at some point I will be forced to take other action. My tremors are consistent all day and stop during sleep. If I have a stressful situation the tremors are worse. I take ashwagandha to help calm me when necessary. I follow a strict ritual with certain music and sounds to help me get to sleep. I also deep breathe when necessary. I eat mostly organic and watch my nutrition so I am not eating empty calories.

The Parkinson's medications primarily replace the Lost dopamine. Velvet bean also replaces lost dopamine.

I have osteoporosis, spinal stenosis and a replaced hip that interfere with my daily activities. I see a doctor for those conditions as well. Most people have other conditions they are dealing with so it can make the treatment a balancing act. It can be hard to tell if the symptoms belong to PD or something else. I see people taking multiple medications and wonder if they are not part of the problem. Hopefully they have excellent doctors to keep it sorted out.

Dealing with each individual symptom has worked for me so far. Moving when you don't feel like it is hard. I feel like those that exercise have a better quality of life. Keep yourself moving, even when setting rolling your ankles, wrists. Neck or lifting your knees, anything to keep moving. Watch a youngster sitting on the couch, they don't stop moving! We older adults tend to sit still for too long. In the old days they called it stoving up when your body became stiff. God bless.

April 19
A MyParkinsonsTeam Member

Russell. I didn’t take any drugs after I was Diagnosed I had Drug Induced PK. I just stopped the drug that was a problem. I got better slowly.

April 21
A MyParkinsonsTeam Member

I am on rasgaline for the past 6 months. My tremor is better on my left which is my worse site. The balance and instability are about the same. I am still using the Cala watch on the Right and I lovr it. It is diminishing my tremor in that hand significantly. I can use it as often as I need and that is great..
I agree daily exercise is essential. I try to go to the mall to walk 4 to 5 days a week also.

April 19
A MyParkinsonsTeam Member

Check out a guy named "The Shakester" on most all socials, he has extensive knowledge of alternatives and backs it up with his own 20 year plus PD and he's very inspirational!!!

April 20
A MyParkinsonsTeam Member

No I have to have it

April 18

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