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A MyParkinsonsTeam Member asked a question 💭
Phoenix, AZ

Seems to be ineffective for me. Still have rigidity and difficulty walking.
I take 4 a day.

April 26
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Answer Summary

Members discussed whether levodopa is working for Parkinson's symptoms like rigidity and difficulty walking, with many sharing that they... Read more

Members discussed whether levodopa is working for Parkinson's symptoms like rigidity and difficulty walking, with many sharing that they needed higher doses or add-on medications to feel relief. Several members described adjusting their daily pill counts, with some taking up to 10 pills a day, while others found medications like Rytary, Inbrija, or Crexont more effective than standard carbidopa-levodopa. A recurring theme was the challenge of finding the right dose and medication combination, often complicated by side effects, insurance coverage, and difficulty reaching neurologists.

A MyParkinsonsTeam Member

I take CreXon. 4x daily. It works wonderfully!

April 27
A MyParkinsonsTeam Member

I upped my dosage to 6.;:

April 27
A MyParkinsonsTeam Member

My husband has tried most of the PD drugs besides carbidopa-levodopa. Jim's issue isn't tremors but gait. He gets slower and slower and nothing seems to help. He saw his neurologist yesterday and her solution to the fact that his pills are less effective was to add 2 more pills of c/l. He will be taking 10x 100 mg. He can't take the higher dose pills (250 mg) because they make him throw up. She said that Crexont works really well but isn't covered by most insurance. In her opinion, Rytary wasn't as effective. She said that if the higher dose of c/l doesn't help, we might try Nouriance (sp??).

May 1
A MyParkinsonsTeam Member

I'm in AZ. With Medicare, drug prices are low.

April 30
A MyParkinsonsTeam Member

My neurologist retired and I am waiting for a appointment with the new neurologist. I will ask her about your recommendation. We are in Canada so the medications are free. Where are you located? Thank you for your reply. Best Regards Candace

April 30

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