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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Elkins, WV

I’m going to try it once insurance approves it.

https://www.vyalev.com/content/dam/vyalev/docs/...

May 26 (edited)
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A MyParkinsonsTeam Member

If it is Tyler, yes. Unfortunately. I has an allergic reaction to it and had to stop it after 5 days. I talked to 3 ambassador for the medication and they felt that they had their life back.
Sonja

May 26
MyParkinsonsTeam

The link shared leads to a Facebook page, but unfortunately it's not possible to access or view the content at that URL directly — so it's hard to know exactly what treatment or therapy is being referred to!

Could you share a little more detail about what it is you're planning to try? That way, it'll be much easier to Show Full Answer

The link shared leads to a Facebook page, but unfortunately it's not possible to access or view the content at that URL directly — so it's hard to know exactly what treatment or therapy is being referred to!

Could you share a little more detail about what it is you're planning to try? That way, it'll be much easier to provide helpful, relevant information about it in relation to Parkinson's disease.

May 26
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member where is your neuropathy?

May 27
A MyParkinsonsTeam Member

I was on the VYALEV pump for 3-4 months and developed a cellulitis at one of the port locations and then severe rapid onset neuropathy which is one of the side effects that they have in very small print. My neurologist took me off it immediately and I’m back on Rytary but they say that the neuropathy is probably permanent.
VYALEV was a total disaster for me…
Tim

May 27
A MyParkinsonsTeam Member

Sounds like it is sort of like Onpago. A continuous infusion.

May 26

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