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I just started on it last week. I have mixed feelings about it. It is easy to get around outside but at the same time it's difficult to give up at feeling of Independence and freedom when making decisions where you go. My legs are in pretty tough shape now such that my home caregivers have suggested that I try rehab. I'm going to do the outpatient program for 12 weeks three times a week. The worst part of all this was the speed in which my deterioration occurred. Even my home caregivers are… read more
I had a knee replacement on both legs then the left one got staph in it and was cleaned and replaced as well needless to say that along with Parkinson's I barely walk anywhere without my cane long distance with my jazzy electric chair! At first I felt destroyed but now I'm happy that when the wife wants to go shopping with her and out to eat and whatever!!! I'm grateful that I'm even walking as it's better than the alternative any day. I have a Jazzy collapsible electric chair I just put in the trunk of my car and off to my grandsons ball game!!!
Like my dr tells me about my cane,rolator and wheelchair when I go to the Dr's anyway it's better than falling and breaking your hip or something and being bed ridden
Susan, Just remember that you are still above the ground and not 6 feet under pushing daisies up!!!! Keep your motivation and deal with the really crummy hand you have been dealt the best way you know how. And many of us will be praying for you💜❤️👍
@A MyParkinsonsTeam Member, Last year, I wanted to spend some time with my granddaughter as she was visiting her dad around his birthday. She lives in Japan so it is a big deal when she gets to come to America. We wanted to go to a tourist attraction where I know there would be a lot of walking. I decided that a wheelchair would be my best option. Instead of feeling restricted or that I was giving up Independence, I experienced more because I didn't tire as easily since @A MyParkinsonsTeam Member was pushing me. It also gave me the freedom of staying with my granddaughter while she finished eating her ice cup when my son and husband went to get the car.
What you're feeling about the wheelchair is completely valid — and you are absolutely not alone in those mixed emotions. The tension between gratitude for the mobility it provides and the grief over lost independence is something many people with Parkinson's navigate.
One MyParkinsonsTeam member shared a perspective that Show Full Answer
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