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A MyParkinsonsTeam Member asked a question 💭
Homosassa, FL
June 26
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Answer Summary

Members responded to a question about burning pain, with many confirming it is a common and ongoing struggle, describing sensations like... Read more

Members responded to a question about burning pain, with many confirming it is a common and ongoing struggle, describing sensations like sunburn all over, deep burning in the legs, and burning feet and toes. Several members shared what helps manage the pain, including staying on top of medication timing, Gabapentin, Celebrex, heating pads, Tiger Balm, and warm soaks. A recurring theme was the importance of not letting pain get too severe before treating it, as it becomes much harder to bring back under control.

A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, Even a small dose of Gabapentin makes me so dizzy that I can't walk.

July 1
A MyParkinsonsTeam Member

Thanks for the info on the medicine!

June 29
A MyParkinsonsTeam Member

The burning pain was one of my first symptoms and continues to be a problem to manage. The only thing I can tell you that works for me is being really careful to manage the timing on my medication. I have to be sure that I’m aware as soon as I feel that tingle that that means its. time for my next dose of crexont.. Don’t let your feet get too bad before you take the medicine, cause it’s hard to get back on top of it once it’s got you down.

June 29
A MyParkinsonsTeam Member

Yes burning feet and toes and aching calfs and thighs

June 27
MyParkinsonsTeam

Yes, burning pain is actually quite common among people with Parkinson's. Many MyParkinsonsTeam members have shared experiences with this type of pain, and it can show up in different parts of the body.

Some commonly reported areas include:

- Feet — especially at night
- Shoulders and arms — described as burning or aching Show Full Answer

Yes, burning pain is actually quite common among people with Parkinson's. Many MyParkinsonsTeam members have shared experiences with this type of pain, and it can show up in different parts of the body.

Some commonly reported areas include:

- Feet — especially at night
- Shoulders and arms — described as burning or aching
- Legs — burning sensations running through the limbs
- Skin — a burning feeling just from touch This type of pain is often linked to nerve-related issues or muscle rigidity that comes with Parkinson's. One MyParkinsonsTeam member described their lower back and leg nerve pain as being caused by spinal degeneration combined with Parkinson's rigidity trapping a nerve.

The good news is that burning pain can often be managed. Talking to a neurologist or pain specialist about options — including medications like gabapentin — is a great first step. No one should just push through it silently! 💙

June 26

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