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A MyParkinsonsTeam Member asked a question 💭
Oneida, NY
July 16
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Answer Summary

Members rallied around the question of apps and programs that help people with Parkinson's manage voice loss, with the Whispp app, Speak Out,... Read more

Members rallied around the question of apps and programs that help people with Parkinson's manage voice loss, with the Whispp app, Speak Out, and the LSVT-Loud program being among the top recommendations shared. Several members described the deep personal impact of losing their voice, including one who relied on it as a school superintendent and found technology helped restore their confidence and ability to lead. A recurring theme was the importance of consistent practice, with tips like counting out loud and reading sentences in a strong voice to strengthen vocal cords and keep the voice from going soft.

MyParkinsonsTeam

The app is called Whispp. It's designed to convert low-volume or impaired speech into clearer speech during phone calls, which can be really helpful when Parkinson's affects vocal volume. There are also a few other options worth knowing about for speech and communication support:

- SpeechVive – A wearable earpiece that may Show Full Answer

The app is called Whispp. It's designed to convert low-volume or impaired speech into clearer speech during phone calls, which can be really helpful when Parkinson's affects vocal volume. There are also a few other options worth knowing about for speech and communication support:

- SpeechVive – A wearable earpiece that may help increase speech volume
- Beats Medical – An app offering speech therapy
- SingFit / SingApp: Parkinson's – Apps that use singing to support speech

It's also worth asking a doctor about a referral to a speech therapist, as therapies like LSVT LOUD have helped many people with Parkinson's speak louder and more clearly. As one MyParkinsonsTeam member put it, consistency is key — "it is a 'use it or lose it' deal."

July 16
A MyParkinsonsTeam Member

I downloaded the Whispp app and set it up; it’s incredible! We are blessed to have such technology available.

I had serious voice problems very early after my diagnosis. I was a superintendent of schools and my voice was a critical tool of leadership. I used sound field amplifiers in meetings and eventually needed to use text-to-speech to function in meetings and even at home. I was fortunate to have an outstanding team of technology experts who set it all up for me. Now, with an app like this one, we can all have access to such powerful technology.

When I lost my ability to easily and freely communicate, I lost part of myself. Until I acclimated to new methods of communicating, and my staff, students and community acclimated to new ways of understanding me, I lost confidence in my ability to lead and serve. Technology helped me get it back.

This technology you shared in your post can help us manage PD’s stealing of our ability to vocalize and NOT allow it to steal our voice!

Thanks for this!

July 16
A MyParkinsonsTeam Member

PS. We count out loud. For everything

July 25
A MyParkinsonsTeam Member

Thank you for the information,I’m going give it a try. I’ll let you know how I make out. Thanks again

July 22
A MyParkinsonsTeam Member

I don't know what app. But the program is called big and loud.

July 19

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