That's a great question to reflect on! While this is a space for sharing and support rather than personal experience, here's what MyParkinsonsTeam members have described about their "off" days — and it's clear no two experiences are exactly alike.
"Off" time is when Parkinson's medication starts wearing off and symptoms Show Full Answer
That's a great question to reflect on! While this is a space for sharing and support rather than personal experience, here's what MyParkinsonsTeam members have described about their "off" days — and it's clear no two experiences are exactly alike.
"Off" time is when Parkinson's medication starts wearing off and symptoms begin creeping back in. Members have described it in many ways, including:
- Tremors returning and worsening gait
- Muscle stiffness and cramping
- Extreme fatigue and low energy
- Difficulty talking
- Loss of balance
- Pain during "off" periods
- Freezing — suddenly being unable to move
- Urinary incontinence
- Brain fog and mood changes One MyParkinsonsTeam member put it simply: "The medicine wears off and I can't move." Another shared that their gait gets really bad, hand tremors return, and leg tics keep them from sleeping.
The good news is that "off" time can often be managed with help from your doctor — whether through adjusting doses, timing, or adding medications. Tracking your symptoms is a great first step to having that conversation.
July 27
I have problems getting my words out and my hands shake.
July 28
Thank you very much for your great reply
July 28
An off day for me starts when I get up and the tremors start and don't stop after taking my meds and then I find my body is stiff and I can barely walk and I become very agitated then fatigue sets in at that point I put it in God's hands and ask for the strength to make it through the day
July 27