I was dxd with PD two months ago and struggle with aches, constipation, no energy and relentless nausea. I am 59 and concerned about my physical abilities for the future - in retirement. Will I be able to enjoy retirement or just be able to struggle through days like I feel I am doing now while trying to work? So far this really sucks!
The nausea could be a side effect of the levodopa. It can be hard to tolerate. Talk to your doctor about it. You may need a lighter dose or an alternative way of ingesting it (i.e. extended release.) For now, try taking your pills with a food that isn't protein, like a banana, crackers, bread, etc.
For the achiness, try gentle exercise like stretching, yoga, tai chi, pool walking. The more you sit, the more you'll hurt.
Yes, heat can leave some people with Parkinson’s feeling completely drained and achy. Parkinson’s can affect the autonomic nervous system, which helps control body temperature and sweating. Some people may become too hot or too cold, sweat too much or too little, or have trouble adjusting when the temperature changes.
Heat may also worsen fatigue, stiffness, muscle cramping, dehydration, and low blood pressure. Staying cool is one of the best things you can do, because heat and Parkinson’s often do not go together well. Try using a fan or cool damp cloth, drinking water regularly, wearing lightweight clothing, and avoiding strenuous activity during the hottest part of the day. Gentle stretching in a cool room may help, but do not push yourself when your body is already exhausted.
Definitely talk with your neurologist about the aching and difficulty with heat. Your neurologist can review your medications, blood pressure, hydration, and temperature regulation to see what may be contributing.
Seek prompt medical help if you develop confusion, fainting, chest pain, severe breathlessness, vomiting, hot dry skin, or weakness that does not improve after cooling down.
Retirement will help because you can pace your physical movements & take breaks to rest. Also being able to eat small meals & drink more fluids helps
I certainly understand the aches I use Tylenol only as needed and I mix 1/4 teaspoon ion magnesium and 8oz water and drink it before bed time and it helps with sleep and muscle aches! Works for me! Not 100% but tends to make it at least tolerable,There are muscle relaxers that can be prescribed but I already take a tremendous amount of meds as it is what with PD and chronic afib and uncontrolled high blood pressure 220/110 most of the time (stroke zone) so if I can do it without another prescription I will! I pray you find a way to ease your pain that works for you
First of all — two months in, juggling work AND all of this? That takes real strength, even when it doesn't feel like it. What you're feeling is completely valid, and you're definitely not alone in this.
The early weeks after a Parkinson's diagnosis can feel overwhelming, especially when symptoms like achiness, fatigue Show Full Answer