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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I was dxd with PD two months ago and struggle with aches, constipation, no energy and relentless nausea. I am 59 and concerned about my physical abilities for the future - in retirement. Will I be able to enjoy retirement or just be able to struggle through days like I feel I am doing now while trying to work? So far this really sucks!

August 6
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A MyParkinsonsTeam Member

The nausea could be a side effect of the levodopa. It can be hard to tolerate. Talk to your doctor about it. You may need a lighter dose or an alternative way of ingesting it (i.e. extended release.) For now, try taking your pills with a food that isn't protein, like a banana, crackers, bread, etc.

For the achiness, try gentle exercise like stretching, yoga, tai chi, pool walking. The more you sit, the more you'll hurt.

August 6
A MyParkinsonsTeam Member

Yes, heat can leave some people with Parkinson’s feeling completely drained and achy. Parkinson’s can affect the autonomic nervous system, which helps control body temperature and sweating. Some people may become too hot or too cold, sweat too much or too little, or have trouble adjusting when the temperature changes.

Heat may also worsen fatigue, stiffness, muscle cramping, dehydration, and low blood pressure. Staying cool is one of the best things you can do, because heat and Parkinson’s often do not go together well. Try using a fan or cool damp cloth, drinking water regularly, wearing lightweight clothing, and avoiding strenuous activity during the hottest part of the day. Gentle stretching in a cool room may help, but do not push yourself when your body is already exhausted.

Definitely talk with your neurologist about the aching and difficulty with heat. Your neurologist can review your medications, blood pressure, hydration, and temperature regulation to see what may be contributing.

Seek prompt medical help if you develop confusion, fainting, chest pain, severe breathlessness, vomiting, hot dry skin, or weakness that does not improve after cooling down.

August 13
A MyParkinsonsTeam Member

Retirement will help because you can pace your physical movements & take breaks to rest. Also being able to eat small meals & drink more fluids helps

August 6
A MyParkinsonsTeam Member

I certainly understand the aches I use Tylenol only as needed and I mix 1/4 teaspoon ion magnesium and 8oz water and drink it before bed time and it helps with sleep and muscle aches! Works for me! Not 100% but tends to make it at least tolerable,There are muscle relaxers that can be prescribed but I already take a tremendous amount of meds as it is what with PD and chronic afib and uncontrolled high blood pressure 220/110 most of the time (stroke zone) so if I can do it without another prescription I will! I pray you find a way to ease your pain that works for you

August 6
MyParkinsonsTeam

First of all — two months in, juggling work AND all of this? That takes real strength, even when it doesn't feel like it. What you're feeling is completely valid, and you're definitely not alone in this.

The early weeks after a Parkinson's diagnosis can feel overwhelming, especially when symptoms like achiness, fatigue Show Full Answer

First of all — two months in, juggling work AND all of this? That takes real strength, even when it doesn't feel like it. What you're feeling is completely valid, and you're definitely not alone in this.

The early weeks after a Parkinson's diagnosis can feel overwhelming, especially when symptoms like achiness, fatigue, nausea, and constipation all hit at once. The good news is that many people find things improve as their treatment plan gets dialed in.

Here are some things that have helped others manage the achiness and fatigue:

- Warm water or heat — soaking hands or affected areas in warm water can ease muscle stiffness and achiness
- Gentle daily exercise — even short walks can boost energy levels and reduce stiffness over time. Start slow and build up gradually
- Rest when needed — short naps earlier in the day can help recharge without disrupting nighttime sleep
- Avoid vigorous exercise in the heat or late in the day — this can drain energy further

For nausea and constipation, it's really important to bring these up with your neurologist or doctor, as medication adjustments may help significantly. As for retirement — many people with Parkinson's go on to live full, enjoyable lives. A MyParkinsonsTeam member shared that once medications started working, most of their symptoms came under control and they were still able to do most things, just at a slower pace with rest breaks.

Medications can take time to find the right balance, but patience really does pay off. As one MyParkinsonsTeam member put it, the inconsistency can be tough, but you do get used to navigating it.

The most repeated advice from neurologists and members alike? Exercise, exercise, exercise. It's widely considered the best tool for slowing symptom progression — and that's something worth holding onto for the future.

Please do talk to your health care team about all your symptoms. You deserve a plan that helps you feel better — not just get through the day. 💙

August 6

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