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He was misdiagnosed six years ago with Alzheimer’s Disease. He was correctly diagnosed with Parkinson’s with dementia just recently

August 6
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A MyParkinsonsTeam Member

Parkinson’s disease dementia is a real condition known as PDD, but wandering at night does not tell you exactly what stage he is in. It may come from dementia, poor sleep, medication, or confusion. If this wandering is new or suddenly worse, call his doctor promptly, because an infection or medication problem can sometimes cause a sudden change.

For now, make the house as safe as possible. Use night-lights, remove anything he could trip over, secure outside doors, and consider a door alarm so you know if he tries to leave. He may also need someone nearby at night. The Parkinson’s Foundation and Alzheimer’s Association offer helpful safety information. Please talk with his neurologist and explain exactly what has been happening. I hope everything works out well.

August 10
MyParkinsonsTeam

Nighttime wandering and confusion in Parkinson's disease dementia can sometimes look very similar to symptoms seen in other forms of dementia, which can make diagnosis tricky. It's worth knowing that Parkinson's disease dementia has its own distinct set of symptoms that a neurologist can help identify.

Some key symptoms of Show Full Answer

Nighttime wandering and confusion in Parkinson's disease dementia can sometimes look very similar to symptoms seen in other forms of dementia, which can make diagnosis tricky. It's worth knowing that Parkinson's disease dementia has its own distinct set of symptoms that a neurologist can help identify.

Some key symptoms of Parkinson's disease dementia to be aware of include:

- Hallucinations (seeing or hearing things that aren't there)
- Delusions or paranoid thinking
- Memory problems
- Confusion that worsens at night ("sundowning")
- Sleep-wake cycle disruptions — being awake all night and sleepy during the day
- Acting out dreams during sleep (REM behavior disorder) Nighttime confusion and wandering can be linked to "sundowning," where symptoms worsen in low light or after dark. As one MyParkinsonsTeam member noted, their hallucinations consistently happened after sundown.

Some practical steps that may help at night include:

- Keeping lights on to reduce confusion
- Maintaining a consistent sleep schedule
- Engaging in stimulating activities earlier in the evening

If there are concerns about a misdiagnosis, speaking openly with a neurologist is really important. They can review medical history, current medications, and order neuropsychological testing to get a clearer picture of what's happening.

August 6

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Dallas, TX