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Unable to do anything. I know to Ask my neurologist but I actually wanted to ask you first have you experienced this too?

I am so tired of parkinson's .....everyday is something and some days I just can't take it all. I feel so isolated and symptomatic
Please respond.

August 9
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Answer Summary

Members came together around the shared struggle of post-shower exhaustion with Parkinson's, offering both emotional support and practical... Read more

Members came together around the shared struggle of post-shower exhaustion with Parkinson's, offering both emotional support and practical tips for making bathing safer and less draining. Several members shared helpful strategies including using lukewarm water, shortening shower time, sitting on a shower chair, ending with cool water, using a handheld wand, and resting in a recliner or in front of a fan afterward. A recurring theme was grief for the independence they once had, along with warm encouragement to be gentle with themselves and lean on the community for support.

A MyParkinsonsTeam Member

Why a Warm Shower Can Leave Someone with Parkinson or Parkinsonism Exhausted

For someone with Parkinson’s disease or parkinsonism—especially when autonomic dysfunction is present—a warm shower can place a surprising amount of stress on the body.

Warm water dilates the blood vessels near the skin. This can lower blood pressure and reduce blood flow to the brain and muscles. Standing relatively still in the shower compounds the effect because blood can pool in the legs and abdomen. Washing, turning, reaching, drying, and dressing add further physical demands.

Parkinsonism can also disrupt temperature regulation and sweating. A person may sweat too much, too little, unevenly, or long after leaving the shower. Saying the body “absorbed the heat” is reasonable: warm water transfers heat into the skin and tissues. The real difficulty is that an impaired autonomic nervous system may not release that heat, regulate sweating, or maintain circulation efficiently.

This explains why exhaustion can continue afterward. The blood vessels may remain dilated, blood pressure may stay lower than usual, sweating and fluid loss can continue, and the body is still working to cool itself. The result may be extreme sweating, weakness, dizziness, heaviness, breathlessness, or a complete “wiped-out” feeling.

Helpful changes include using lukewarm water, shortening the shower, improving bathroom ventilation, sitting on a secure shower chair, preparing towels and clothing beforehand, and resting in a cool room immediately afterward.

Seek prompt medical attention if the sweating or weakness occurs with chest pressure, fainting, confusion, severe breathlessness, a new irregular heartbeat, one-sided weakness, fever, or hot, dry skin with altered awareness.

This is not simply ordinary tiredness from bathing. A warm shower can create heat stress, blood-pressure stress, and physical stress simultaneously—and an autonomic nervous system affected by Parkinson’s or parkinsonism may struggle to compensate.
Always check with your Doctors!!

August 10
A MyParkinsonsTeam Member

I think the body loses the ability to regulate temperature, and it may affect muscles and nerves that are already over stimulated. Just an opinion

August 9
A MyParkinsonsTeam Member

Yup! Laying on the floor all day isn't recommended.

🤪🌞👏🤗👍☘🇮🇪🇺🇲

September 1
A MyParkinsonsTeam Member

I've got a chair in my bathtub. It found at Walmart a suction cup that holds the shower wand lower when I sit the water hits my chest. All I have to do is lean forward a little time wash my hair. It also give me extra support when I stand up.

August 18
A MyParkinsonsTeam Member

Hi Theresa that will be great for you .you won't know yourself delighted for you If you want me I am here all the best Therese Byrne ☘️ 🇮🇪

August 15

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Boston, MA