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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyParkinsonsTeam Member asked a question 💭
Gloucester Point, VA

My doc prescribed for pain does anyone else use this and does it help I take too many prescriptions as it is

August 12
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Answer Summary

Members shared a range of experiences with Baclofen, prescribed for pain and muscle stiffness related to Parkinson's, with some finding it... Read more

Members shared a range of experiences with Baclofen, prescribed for pain and muscle stiffness related to Parkinson's, with some finding it helpful long-term while others noticed it losing effectiveness or causing unwanted reactions like dizziness or feeling jittery. Several members mentioned alternatives such as Zanaflex, Clonazepam, CBD tinctures, and herbal remedies, with a strong reminder to always check with a doctor or pharmacist before making any changes. A recurring theme was that each person responds differently to medications, making open communication with your care team essential.

A MyParkinsonsTeam Member

WWP will not take any diazepam meds because they cause addiction, dizziness and morning drug hangovers. She takes Greenforia Full Spectrum 1000mg CBD tincture for her stress, anxiety, sore muscles and sleep. A quarter of a dropper 2 to 3 times a day seems to keep her temporarily pain free, anxiety under control and sleeps up to 8 undisturbed hours without any drug after effects. It is safe and affordable with her neurologist's approval.

August 15
A MyParkinsonsTeam Member

Baclofen is a prescription muscle relaxant. It is mainly used to reduce muscle tightness, stiffness, and certain types of painful spasms. It does not treat Parkinson’s itself, and it may not help every kind of Parkinson’s-related cramping or dystonia.

When talking with your doctor, describe exactly what the spasms feel like, where and when they happen, how long they last, and whether they occur as your Parkinson’s medication wears off. Since your doctor suggested baclofen, ask what type of spasm they believe they are treating, what improvement you should expect, and whether you can begin with a small dose because you already take several medications.

Baclofen is one possible treatment, but doctors may also consider medicines such as Flexeril, Valium, Zanaflex, or Robaxin. Each works differently and has different side effects. Baclofen itself may cause sleepiness, dizziness, weakness, or balance problems, so your doctor and pharmacist should review your complete medication list and determine which option, if any, is safest for you.

August 13
A MyParkinsonsTeam Member

Baclofen is a muscle relaxer. I’ve taken it several times. My doctor does not recommend using it more than 10 days at a time. She says it becomes ineffective.

August 12
A MyParkinsonsTeam Member

I find it amazing how each individual has a different opinion of what works and what does not. It reinforces the uniqueness of each of us and the importance of our doctors, that give us their knowledge and advice of all the different alternatives. It is always important to talk with your doctor regarding the prescription medication as well as the natural remedies. Both natural and prescription medications can have severe interactions when you are taking numerous medications for Parkinson's and the other health concerns that so many of us have. So, my advice is to play it extra safe and always check with your doctor or neurologist to make sure there are no conflicts with your other medications of any kind. Stay well my friends!!

August 17
A MyParkinsonsTeam Member

I go to my movement disorder neurologist at Hershey Medical Center PA. I took Baclofin a few times when my pain was really bad. However, it was prescribed for Migraines not stiffness. My movement disorder neurologist refuses to give me any medicine at all until she re-evaluates me in February. I had to fight with them to get this appointment. They didn't want to see me until my yearly appointment next June. I can't get anyone to communicate with me. I'm going to John Hopkin's Friday to see a new movement disorder neurologist. I'm not going for a different diagnosis, I have Parkinsonism. I am going to check them out to see what their communication is like. It's 2 hours away from my house, but if they can provide me with the care and communication I need, I will definitely switch. They are also listed by The Parkinson's Foundation as a Parkinson's Hospitals of Excellence. Crossing my fingers.

August 16

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