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My husband has parkinsons. He sleeps most of the day. I still work from home and am home with him 24/7. I could be retired but thought still working would help the loneliness but it does not. Im at a point I am scared to go out of the house incase he needs me. I wear a baby monitor so I can hear him but will I get to him in time. Have I just lost mind. Just kidding but do feel that way some 😒days.
I know it can be hard being a caregiver I have one and I try to give him breaks during the day even if it's only a couple of hours a day you can get help having someone come in a couple hours a day to give you some down time so you can rest or do something for yourself you just have to get a hold of DHS apply for home health care and once approved they can find you someone who will come in for you that's how my adopted brother became my caregiver I hope this helps you out
Best Wishes
Theresa Generes
You have absolutely NOT lost your mind — what you're feeling is incredibly common among caregivers, and it makes complete sense. The baby monitor idea is actually something other caregivers use too, so you're already thinking smart!
Loneliness as a caregiver is real and valid. Here are some things that have helped others in Show Full Answer
Thank you Kay, I love your reply. You give me a lot to think about and hopefully do some of your suggestions. I know I need to take care of myself and need to follow some of you ideas/instructions above. I need to trust others to take care of him. ❤️
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