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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do you have couples with pd?

A MyParkinsonsTeam Member asked a question 💭
Sacramento, CA
6 days ago
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Reactions
A MyParkinsonsTeam Member

Today my wife in hospital day 6 my daughter stays w her. I have been on my own I can not emphasize exercise dr appointments monthly proper diet taking pills on time. And really understanding your limitations everyone but me surprised but why I train and trained for being self reliant. My wife’s cancer needs all of our care mine too. I’m her caregiver not a handicapped disabled person. All kidding aside aside be strong for yourself. I have toxic encephalopathy overdosed sniffing glue do not process things properly not an excuse anymore after 25 years dropping the rock I’m here to support her. Ps sniffing glue bad for your health

4 days ago
A MyParkinsonsTeam Member

Make sure you have some back-up if one or both of you become unable to manage your affairs. Do you have a family member who could help out? Look into Assisted Living and home health care in your area to find out your options when you need help with daily tasks.

5 days ago
A MyParkinsonsTeam Member

What can we do as a couple with pd?

6 days ago
MyParkinsonsTeam

Absolutely! Many couples navigate Parkinson's together, and their experiences are a big part of the MyParkinsonsTeam community. Whether one partner has PD or both are affected in some way, the journey is very much a shared one.

A MyParkinsonsTeam member put it beautifully: caregivers and partners often become invisible in Show Full Answer

Absolutely! Many couples navigate Parkinson's together, and their experiences are a big part of the MyParkinsonsTeam community. Whether one partner has PD or both are affected in some way, the journey is very much a shared one.

A MyParkinsonsTeam member put it beautifully: caregivers and partners often become invisible in conversations, with everyone asking how the person with PD is doing — but never asking how the caregiver is holding up.

Couples often face challenges like:

- Balancing the roles of caregiver and life partner
- Managing behavioral or emotional changes related to PD
- Communicating needs clearly to each other
- Finding time for self-care as a caregiver

Many couples have found helpful ways to cope together, including:

- Attending support groups as a pair
- Seeking counseling or relationship therapy
- Taking short breaks during emotionally intense moments
- Leaning on the PD community for shared understanding

The good news is that many couples describe their bond growing stronger through the experience. As one MyParkinsonsTeam member shared, it's about facing PD "as a couple who will live with and face this together."

6 days ago

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