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A MyParkinsonsTeam Member asked a question 💭

If not, what are the drug plans to buy privately?

September 28
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Answer Summary

Members shared several helpful strategies for affording Rytary, including using Medicare Part D plans (with costs varying by insurer and... Read more

Members shared several helpful strategies for affording Rytary, including using Medicare Part D plans (with costs varying by insurer and pharmacy), qualifying for Medicaid assistance capping costs at around $12, and applying through the PAN Foundation, which one member described as providing free Rytary regardless of income with direct home delivery. Several members noted that contacting the drug manufacturer directly for patient assistance is worth trying, and the Medicare.gov website can help compare Part D plans and pharmacy pricing in your area. A recurring theme was frustration over high drug costs, with heartfelt encouragement from the community to explore every available resource.

A MyParkinsonsTeam Member

Well I have been taking Rytary for over 3 years and haven’t paid a cent. My neurologist said that there was a grant for it and they would apply for me. It’s not income based and they ship it directly to me from the specialty pharmacy at MUSC. The grant is funded through the Pan Corporation which accepts donations. And they have never had any disruption in my medication. Of course I make a donation to them because it’s my understanding that the drug is not inexpensive?
Google them . The PAN CORPORATION

October 1
A MyParkinsonsTeam Member

Monique brings up great point what if your 63 wife works how to get exspensive drugs? Answer contact drug company and ask for help used to do a lot of insurance. Companies will help good luck !

September 29
A MyParkinsonsTeam Member

Rytary is paid for Medicare Part D which covers prescriptions, so it just depends on which Medicare Advantage plan you have as to how much they will pay.

September 28
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, We qualify for help for prescriptions from Medicaid s we never pay more than $12.65 for any prescription that isn't available over the counter which of course, includes Rytary.

September 29 (edited)
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, It did not work for me. I was 63 when I was diagnosed. Sinemet and other less expensive medications didn't work for me. I was given free samples of Rytary which worked and I tolerate it well. I was told to fill out forms for programs for patients who are seeking help to pay for medications they desperately need, I didn't qualify because I had insurance through the (not)Affordable Healthcare aka Obamacare. No matter which plan I chose, the answers were similar; 3-tier drugs such as Rytary were "covered" with prior authorization and between $700 to $1,000 copay! Once my deductible was met for the year, my cost for all of my prescriptions was $0,00! The Marketplace agents agreed that if I had enough money for my copay, I wouldn't have qualified for the plans. I took it when I had it, and I went without when I didn't. Sometimes I didn't have time to wean off gradually. I believe that my brain was damaged every time I came back off of Rytary; the less notice I had, the greater the damage. It should be against the law to start a patient on a medication that strong unless it is certain that the patient will be able to afford it!

September 29 (edited)

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A MyParkinsonsTeam Member asked a question 💭

A MyParkinsonsTeam Member asked a question 💭
Fremont, CA