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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

my neurologist prescribed a new medication today for me but its not covered by my insurance.The cost is $1500.00 Any ideas of help out there

A MyParkinsonsTeam Member asked a question 💭
Colton, CA
August 27
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Reactions
A MyParkinsonsTeam Member

Have you checked the Trump rx website. It started last February. I just checked for a new med my mds is considering . My insurance co formulary does not list it.
Anyway there are 800 drugs currently listed. Online. May be helpful to you. Pat881

October 13
A MyParkinsonsTeam Member

That’s just ridiculous!!! How is anyone supposed to afford that? Healthcare just sucks. So only people who can afford it will get it and the rest of us will have to suffer when it could have helped us. It’s so sad there isn’t a drug company with humanitarian options for people who can’t afford it.

October 13
A MyParkinsonsTeam Member

Thanks for sharing that. It's easy to sort of get locked into a plan and not pay close attention to changes. Looks like there are many this year.

October 13
A MyParkinsonsTeam Member

If you are on Medicare, when it comes time to change plans this fall enter all of your drugs in the Medicare.gov site and see if any other insurance companies do cover that drug. I seem to change my husband's part D plan almost every year, looking for the best one.

August 28
MyParkinsonsTeam

That's a stressful situation, but there are definitely some options worth exploring! A $1,500 price tag doesn't have to be the final word.

Here are some practical steps to consider:

- Contact the drug manufacturer directly — Many pharmaceutical companies offer patient assistance programs or copay cards, especially for newer Show Full Answer

That's a stressful situation, but there are definitely some options worth exploring! A $1,500 price tag doesn't have to be the final word.

Here are some practical steps to consider:

- Contact the drug manufacturer directly — Many pharmaceutical companies offer patient assistance programs or copay cards, especially for newer, more expensive medications
- Search online for coupons or discount programs — Websites like GoodRx can sometimes offer prices lower than even your insurance copay
- Ask your neurologist about a generic alternative — If one exists, it could be significantly cheaper
- Appeal to your insurance company — Ask your neurologist's office for the procedure and diagnosis codes, then call your insurer to discuss coverage options
- Negotiate with your doctor's office — If insurance won't cover it, let them know the cost is a barrier; they may be able to offer a discount or find an alternative Also, don't forget to carefully review any medical bills for errors — studies suggest a surprisingly high number contain mistakes that can affect what you owe.

Most importantly, don't ignore the issue. Reaching out to a family member, friend, or patient advocate to help navigate the financial side can make a big difference.

August 27

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