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A MyParkinsonsTeam Member asked a question 💭
Bradley, IL
October 14
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A MyParkinsonsTeam Member

Yes the Fatigue was a constant problem for me.

One main reason for me was exertion - weeding, would take me two days to recover.

I read an article about Stress being our biggest enemy. It went on to compare us to a laptop computer. If we worked on a laptop for extended time you would turn it off to cool down. Just existing is a hard time for us and we need to turn off midday with a nap for at least one hour. Not lay down and read a book, chat on the phone, no a true sleep nap to let our mind rest and reset.

After years of doing this I have noticed by not setting an alarm the body would let me know how long of a rest it needs. My most common nap is 1hr 15min, but I have napped for as long as 3 hours. When I let my body decide when to get up i am far more rested than setting any time limit.

May today be better than yesterday if only by an inch and a Smile. 😉

October 14
A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member, T comes with Parkinson's. Nothing happens in the body without multitudes of neurotransmitters such as dopamine connecting nerves to muscles like a toggle switche for every connection along the way. The neurotransmitters provide the electricity to power literally everything we do. Parkinson's is definitively a lack of dopamine, so we are literally running on a low battery. Our medicine, nutrition, exercise, and positive relationships, all boost dopamine, especially grandkids!

October 15
MyParkinsonsTeam

Absolutely not lazy. What's being described sounds very much like apathy and fatigue, which are recognized non-movement symptoms of Parkinson's. Apathy is that strange feeling where the part of the brain that normally sends out "invitations to participate in life" just goes quiet. It's neurological, not a character flaw Show Full Answer

Absolutely not lazy. What's being described sounds very much like apathy and fatigue, which are recognized non-movement symptoms of Parkinson's. Apathy is that strange feeling where the part of the brain that normally sends out "invitations to participate in life" just goes quiet. It's neurological, not a character flaw. Fatigue in Parkinson's can show up as both physical and mental exhaustion — making even simple tasks feel impossible. Many MyParkinsonsTeam members describe feeling wiped out no matter how much they sleep or rest.

Here are some things that may help:

- Talk to your doctor — some medications, like the MAO-B inhibitor rasagiline, may help with fatigue
- Start small with movement — even a short walk can gradually boost energy and mood over time
- Rest without guilt — short naps earlier in the day can help recharge without disrupting nighttime sleep
- Do what you enjoy — dancing, gardening, or any activity that feels good counts

One MyParkinsonsTeam member put it well: exercise may not help immediately, but slowly over time, getting moving — even gently — can make the exhaustion ease up. It's worth bringing this up with your neurologist or care team, as they can help figure out whether it's fatigue, apathy, or something related to how your medications are working. You deserve support for this — it's a real symptom, not a personal failing. 💙

October 14
A MyParkinsonsTeam Member

You’re not lazy, your body is working OT so you’re going to be tired. Show yourself some grace and allow yourself to rest when your body feels like it. Or you can be off the wall like me and take cold showers that gets you going.

3 days ago
A MyParkinsonsTeam Member

No motivation sucks but your beautiful granddaughter probably helps u. My granddaughter like a dopamine pump when we visit. Set small goals achievable it will retrain u . Exercise diet meds and a smile and always be safe.

October 15

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