What can be done when a loved one with Parkinson's starts experiencing hallucinations — seeing things or people that aren't there?
First, know that you're not alone in this. Hallucinations are a recognized part of Parkinson's disease, and many caregivers have been through exactly what you're describing. It's not your fault Show Full Answer
What can be done when a loved one with Parkinson's starts experiencing hallucinations — seeing things or people that aren't there?
First, know that you're not alone in this. Hallucinations are a recognized part of Parkinson's disease, and many caregivers have been through exactly what you're describing. It's not your fault, and it doesn't mean you've done anything wrong.
The most important first step is to contact her neurologist — ideally one who specializes in Parkinson's. Only a small number of people feel comfortable bringing this up with their doctor, but these symptoms can often be treated or managed with medication adjustments. While you're waiting to speak with her doctor, here are some practical tips to help keep things calm and safe at home:
- Stay calm and respond gently — don't argue or try to reason with her about what she's seeing
- Distract and redirect her attention to something soothing
- Keep lights on, especially at night, as darkness can make hallucinations worse
- Be mindful of mirrors and reflective surfaces, which can sometimes trigger or worsen them
- Secure any dangerous objects like sharp tools or car keys, just as a precaution
- Consider door alarms or baby monitors if she tries to leave the home during an episode
A MyParkinsonsTeam member shared that after talking to their health care team and adjusting medication, their loved one's hallucinations were resolved. So there is real hope here. Also, please don't forget to take care of yourself through this. Caregiving is emotionally demanding, and reaching out for support from friends, family, or other caregivers can make a big difference for both of you. 💙
12 hours ago