Hello - is anyone on the Apokyn injection program? My husband is supposed to start it this week Apokyn is an injection medication that can be used up to 5 times a day for bad off times. It gives quick and short term relief similar to an inhaler. My husband's dr has also prescribed Tigan® (trimethobenzamide) to start 3 days before the Apokyn for relief of nausea, a side effect of Apokyn. Of course, my husband has a lot of anxiety about starting any new medication including the Tigan®. Any… read more
My husband's neurologist just prescribed the Inbrijia inhaler to help with "off" times. He was taking the Apokyn injection as needed but it caused orthostatic hypotension (low blood pressure) and it he passed out (Apoykyn is not like levodopa but similar to Miralax). Inbrijia is a levodopa powder that goes into a rescue inhaler for those bad "off" times. He hasn't started it yet but was wondering if anyone has had experience with this new medication. Thanks.
My mum is in the end stage of Parkinsons. The doctors have now taken her off most of the medication she was on as they say that because she has had Parkinsons for almost 22 years the medications do not work as they should. I could do with talking to others that have had or know someone that has had Parkinsons for this length of time. I'm so worried at the moment as last week mum was put on another drug to help keep her calm its called Trazadone but it has made her even worse she has been like a… read more
I am trying to find out if anyone lives in or around any country that offers "Gondola" treatment for themselves or loved ones? This is supposed to help reduce the amount of medication you take daily, it doesn't however, remove the PD medications. If anyone has had the treatment, do they recommend it? Was it difficult to get an appointment etc? I am looking for someplace in the USA where this treatment is offered.