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My sister is about to start Apokyn which is a rescue drug that is injected( like diabetes’ injectable with small thin needle that doesn’t hurt). It supposed to kick in within 10-20 minutes and last about an hour while other carbidopa-levodopa kicks in ( takes about an hour for that). Anyone have experience with this drug?

Apokyn ?

Does anyone here go through this? Im at my wits end and so is my wife. Feels like i am going to die everytime.
Im at the point where I cant breathe, cant move, in pain and extremely nervous. This lasts until the next dose kicks in whenever it decides to that is.

I am on subcutaneous apopine 4mg pr hour 5 mpules to 10 of saline make to 20 ml syringe .. and delivery over 25 hours ,, at 1 mg bolus . I turn the pump off and remove tubing for shower..the biggest problem is .. when finished shower reconnect pump . I forget to turn the pump back on .after 15 minutes , its like I am saying to myself somethings wrong , I ma finding my breathing s hard . feels tight in diaphragm .. altho my o2 sats are normal .. I fnd it hard to inward breath . I… read more

I have read some stuff, but I would like to know what others know or think about it.

Palpitation and heart racing in early evening, from six until 10 or bedtime ….. c very fatigued and tired but do not have heart issues early in day !

It turns out that what I thought was heart issues was actually internal tremors!
Through lots of med adjustment and some alternative supplements I rarely have this sensation anymore!