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About MyParkinsonsTeam
Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Clinical trials"

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Clinical Trials

Clinical Trials

How does one become a part of a clinical trial?

A MyParkinsonsTeam Member

Easiest way is to join Fox Trial Finder https://foxtrialfinder.michaeljfox.org/ You can tell what geographical area, what interests you, etc, and see a list of possibles; usually has way to contact… read more

Are There Clinical Trials Involving Stem Cells?

Are There Clinical Trials Involving Stem Cells?

I would be interested in those.

A MyParkinsonsTeam Member

How's that going?

Clinicaltrials.gov Trials Are NOT Government Acreened Or Approved

Clinicaltrials.gov Trials Are NOT Government Acreened Or Approved

Just thought you'd be interested. I did not know this: The clinical trials on clinicaltrials.gov are NOT checked by the US government. This includes a whole bunch of bogus "stem cell trials" that aren't trials at all. If you have to shell out any money, it's not a real clinical trial. Worth a read. https://consumerist.com/2017/07/20/reminder-stu...

A MyParkinsonsTeam Member

@A MyParkinsonsTeam Member Branson
Think you will benefit from the books an Aware Care Kit.Have you can get from the Parkinson's Foundation their phone number is (Phone number can only be seen by theread more

What's Hot In PD? What Led Scientists To Believe A Cancer Drug Could Treat Parkinson’s?

What's Hot In PD? What Led Scientists To Believe A Cancer Drug Could Treat Parkinson’s?

The recent media blitz about a leukemia drug named Nilotinib as a potential treatment for Parkinson’s disease resulted in thousands of patients and family members phoning their doctors and our 1-800-4PD-INFO Helpline requesting access to this drug. The National Parkinson Foundation quickly responded with a public statement recommending that patients not pursue this therapy unless under a clinical trial. There were serious concerns in the size and methodology of this initial report which was… read more

A MyParkinsonsTeam Member

J

Is Age A Factor For Receiving A Trial Drug For PD?

Is Age A Factor For Receiving A Trial Drug For PD?

I am a 76 year old male with stage 1 PD. My medication is the Neuropro transdermal patch. My neurologist mentioned very interesting results with experimental trials using stem cells.
when I asked how I can be in these trials, and willing to sign any waiver, the response was that I am too old to be in the trials.

Are these trials or even access to trial drugs restricted due to age?????

A MyParkinsonsTeam Member

I know some cancer treatments are limited for older patients, perhaps because they are very expensive and the lifespan isn't likely to be as long or maybe because older patients don't respond as well… read more

Anyone In The UK Interested In A Webinar On 16th December 2022 At 10am Entitled “Getting Involved In Trials And The PD Community”.

Anyone In The UK Interested In A Webinar On 16th December 2022 At 10am Entitled “Getting Involved In Trials And The PD Community”.

PD Frontline will be hosting a webinar on 16th December 2022 at 10am
The webinar is entitled “Getting Involved in Trials and the PD Community” and will centre around three themes
The importance of taking part in research and upcoming trials
The Parkinson’s community
Equality, diversity, and inclusion in Parkinson’s research
We will have talks from representatives of several exciting trials and studies as well as from community-based support groups. Our agenda is attached to this email and… read more

Are There Any Autologous Stem Cell Clinical Trials For PD Happening Anywhere In USA?

Are There Any Autologous Stem Cell Clinical Trials For PD Happening Anywhere In USA?

My husband, who has PD, would love to participate.

A MyParkinsonsTeam Member

Understand at that
Point Still? I would. To help,unaware of any research in my area Have lots of alot ????? I would like some about current research so far

L

Are There Any Clinical Trials For Stem Cell?

Are There Any Clinical Trials For Stem Cell?

A MyParkinsonsTeam Member

I am still vert interested in the clinical trials. I tried to get my application completed but had problems. Please keep me in them. Please let me know what to do thank you
Helyn Wright

Carbo-Levo Is Wearing Off, Pain In Lower Extremities, Mid Chest, And Feels Like He Is Freezing. He Is Not All That Cold To My Touch.

Carbo-Levo Is Wearing Off, Pain In Lower Extremities, Mid Chest, And Feels Like He Is Freezing. He Is Not All That Cold To My Touch.

Pat often times wears a sweat shirt and stocking cap to bed when this happens. Extended release carbo Levi at night does seem to help. Is he alone feeling this way?

A MyParkinsonsTeam Member

We will be out of town. Sounds like a good conference!