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Parkinson's disease

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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Have Experience With Exelon Or Balspar?

Does Anyone Have Experience With Exelon Or Balspar?

A MyParkinsonsTeam Member said:

@A MyParkinsonsTeam Member he hasn't had any negative side effects then? I've just recalled that my mom did try the patch once and it seemed to make… read more

posted over 3 years ago

Has Anyone Experienced Parkinson’s Related Dementia?

Has Anyone Experienced Parkinson’s Related Dementia?

A MyParkinsonsTeam Member said:

Yes, my husband has PD and dementia. It is very sad. He was the bureau Chief for the Associated Press for Northern New England and loved to read! He… read more

posted 3 months ago

Has Anyone Started Nuplazid?

Has Anyone Started Nuplazid?

Husband was on seroquel. That was stopped and he started on Nuplazid a couple weeks ago. Seems to be having a rough adjustment period.

A MyParkinsonsTeam Member said:

oh i take only seroquel, nortryptiline, and klonipin at night. also 10 mg of melatonin.

posted over 3 years ago

I Am Having A Hard Time With Memory I Am 53 And Diagnosed 2.5 Yrs Approx And Told I Have Had Symptoms For 10 Years Or So?

I Am Having A Hard Time With Memory I Am 53 And Diagnosed 2.5 Yrs Approx And Told I Have Had Symptoms For 10 Years Or So?

episodes of memory loss. short term and long term memory.

A MyParkinsonsTeam Member said:

My husband has memory issues also. He was first put on the Exelon patch, which worked well, but then our insurance refused to pay for it. So, he was… read more

posted over 4 years ago

Patch For Motion Sickness?

Patch For Motion Sickness?

I am going on a cruise in March. I have previously used (about 5 years ago) a prescribed patch for motion sickness. My Provider is telling me that a patch is no longer an option and I will need to take 2 tablets a day. Just what I need, 2 more pills to add to the other 12 I am already taking each day. Has anyone else had this issue or can you tell me if there is an available patch to use for motion sickness.

A MyParkinsonsTeam Member said:

my husband has be prescribed excelon for his Lewy body dementia he has with the parkinson. Is anyone familiar with this patch?

posted over 1 year ago

Has Anyone Taken SELEGILINE TAB 5 Mg?

Has Anyone Taken SELEGILINE TAB 5 Mg?

My husband has not started taking the selegiline tab and is wondering if anyone has had experience taking it. Dr said it should help with moving as he often has freezing and sticking to the floor problem, Any input is much appreciated. Thanks all!

A MyParkinsonsTeam Member said:

If the freezing starts with me, I find humming a tune gets me going, like "step, step, step". I know it sound bizarre, but I read it somewhere and it… read more

posted over 3 years ago

Looking For A Good Nutritionist And Doctor That Specializes In Parkinson’s In Chester Or Delaware County?

Looking For A Good Nutritionist And Doctor That Specializes In Parkinson’s In Chester Or Delaware County?

My mom has Parkinson’s and no one has done nutrient testing or spoke to her about her diet. I see her going down hill . Please send me referrals so I can help get her set up with a nutritional plan! I do give her many supplements and nootropics but Im the one who researches everything! She does have hallucinations and I know certain nutrients help slow them. Thanks in advance!

A MyParkinsonsTeam Member said:

Look up the MIND diet. It is similar to the Mediterranean diet. It is recommended mostly for Alzheimer’s patients but it helps with neuro health overall… read more

posted 6 months ago

Parkinsons And Anxiety

Parkinsons And Anxiety

Why is it that some people with Parkinsons suffer such severe anxiety? My MIL has near panic attacks at any changes made to her environment even if we try to make things safer, such as a grab bar or possibly someone coming into her home to help her. She is putting up more barriers to care than she realizes.

A MyParkinsonsTeam Member said:

I continue to take notes on what has been happening as well as meet with her neurologist at each appt. We are suddenly finding that the combination of… read more

posted 6 months ago

Medicare Tries An Experiment To Fight Perverse Incentives To Prescribe High Cost Drugs When Similar Less Costly Meds Do The Same Thing ?

Medicare Tries An Experiment To Fight Perverse Incentives To Prescribe High Cost Drugs When Similar Less Costly Meds Do The Same Thing ?

Suppose you’re an eye doctor and you’re treating a patient with macular degeneration, a disease that can cause blindness. You have the choice of giving one of two drugs — one that costs $2,000 per treatment and another, very similar one, which costs $50 per treatment.

Do you think it would influence your decision if you were paid $117 more if you chose the more expensive drug?

read more

A MyParkinsonsTeam Member said:

Thank you for that very informative post. I have had to become familiar with formulary lists this year. I have been astounded to discover that the list… read more

posted over 4 years ago