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Real members of MyParkinsonsTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Inbrija"

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Inbrija

Inbrija

How fast is it working for everyone? What is the effect on the next dose of rytary? How often do you use it?

A MyParkinsonsTeam Member said:

I have been on Rytary for a year 4 x a day every6 hours KICK IN SOON and I tried to eat applesauce and toast with each pill or half of a sandwich and Arnold Palmer Tea

posted about 2 years ago

Has Anyone Taken Inbrija?

Has Anyone Taken Inbrija?

Has anyone taken Inbrija? It took me 2 months to get it but I got it Tuesday pm & took it for the first time yesterday. It started working in about 10 minutes & full effect was about 35 min. I usually have totally incapacitating off times. Dizzy, lightheaded, nausea, shortness of breath, overall weakness, stiffness, hand & leg tremors, severe & painful toe curling. It usually lasts for about an hour-1.5 hours & sometimes my Sinemet doesnt work at all. I was totally taken back, praising the Lord… read more

A MyParkinsonsTeam Member said:

I haven’t gotten it from my insurance company arrival yet , I have good prescription insurance so it should be covered for a decent co pay , it is an inhaler and I’ve heard it works wonders for the… read more

posted over 1 year ago

Is Anyone Having Extreme Weight Loss

Is Anyone Having Extreme Weight Loss

Having extreme weight loss ?? And she has lost about 15 pounds in the last three months maybe a little bit more she hasn’t been doing anything to lose this weight so I’m very concerned she has started having quite a bit of problems swallowing at the end of the day more so Than during the day!! She has been falling quite a bit lately and passing out she’s passed out three times in the last month blood pressure is good I’m concerned because in our area there is no treatment centers for like the… read more

A MyParkinsonsTeam Member said:

If you’re taking Inbrija stop it. That’s what I was taking when I started to lose weight like your wife is and I stopped it and I started getting the Weight back.

posted over 1 year ago

Anyone Taking Inbrija Inhaler For Off Times?

Anyone Taking Inbrija Inhaler For Off Times?

My husband's neurologist just prescribed the Inbrijia inhaler to help with "off" times. He was taking the Apokyn injection as needed but it caused orthostatic hypotension (low blood pressure) and it he passed out (Apoykyn is not like levodopa but similar to Miralax). Inbrijia is a levodopa powder that goes into a rescue inhaler for those bad "off" times. He hasn't started it yet but was wondering if anyone has had experience with this new medication. Thanks.

A MyParkinsonsTeam Member said:

I had tried Mirapex years bags and that stuff put me to sleep randomly. I found myself dozing off while,e driving on the interstate. Not for me. There are so many meds and side effects, it seems to be… read more

posted about 2 years ago

What Kinds Of Symptoms Do You Feel During Your OFF Times?

What Kinds Of Symptoms Do You Feel During Your OFF Times?

And how do you deal with them and what do you do during these off times? Bean

A MyParkinsonsTeam Member said:

Thank you Bean for letting us know a day for you goes and the good parts. This is the first I have heard of the phlegm dilemma as a symptom of the disease
Today was a good day for the 2 of us. The… read more

posted 11 months ago

Rytary For Smoothing Out Dyskinesia?

Rytary For Smoothing Out Dyskinesia?

Does anyone take Rytary to smooth out instances of dyskinesia? Did you have more side effects? My doctor said I would feel weird on it.

A MyParkinsonsTeam Member said:

I have a rx for rytary and the cost is $683.00 a month, is there any program anyone is on to help with the cost. Between rytary and inbrijia the cost would be close to $1000. 00 a month. i recently… read more

posted 9 months ago

Are There Clinical Trials Involving Stem Cells?

Are There Clinical Trials Involving Stem Cells?

I would be interested in those.

A MyParkinsonsTeam Member said:

It seems that in the beginning, the Inbrija was a lifesaver. However, it not only stopped working as well, and his symptoms are like on fast-forward now. There may not be any correlation, but… read more

posted 8 months ago

Has Anyone Had Experience With The Medication Imbrija

Has Anyone Had Experience With The Medication Imbrija

A MyParkinsonsTeam Member said:

I tried it. After the first dose I coughed it out and a white powder filled the room. Then I read the patient information and learned that it is contraindicated for people with asthma. So, I… read more

posted about 1 year ago

Inbrija Via An Inhaler

Inbrija Via An Inhaler

The FDA approved this in December does anyone know roughly how long it takes for the UK to catch up once a drug like this gets approved in the US?

https://www.businesswire.com/news/home/20181221...

A MyParkinsonsTeam Member said:

I sorry to hear that, you and your husband will be in my prayers

posted about 3 years ago

Has Anyone Looked Into 2 New Drugs For Off Periods --------------- Safinamide And Inbrijo ??

Has Anyone Looked Into 2 New Drugs For Off Periods --------------- Safinamide And Inbrijo ??

Safinamide , generic for Xadago (which sells for $950 /month, w/o insurance) i only found the Xadago. The Inbrijo is a nose spray, which I didn't find anywhere! My doctor prescribed them for me! They could be tthe answer to the misable off periods! If you don't have off periods now, you probably will later! To make it later than sooner, take as little levadopa as possible, to avoid the resistance to the levadopa. Once your totally resistant to levadopa, you are in a permanant off… read more

A MyParkinsonsTeam Member said:

U r amazing 😍
Thank you for sharing 💗

posted almost 3 years ago