How fast is it working for everyone? What is the effect on the next dose of rytary? How often do you use it?
Has anyone taken Inbrija? It took me 2 months to get it but I got it Tuesday pm & took it for the first time yesterday. It started working in about 10 minutes & full effect was about 35 min. I usually have totally incapacitating off times. Dizzy, lightheaded, nausea, shortness of breath, overall weakness, stiffness, hand & leg tremors, severe & painful toe curling. It usually lasts for about an hour-1.5 hours & sometimes my Sinemet doesnt work at all. I was totally taken back, praising the Lord… read more
My husband's neurologist just prescribed the Inbrijia inhaler to help with "off" times. He was taking the Apokyn injection as needed but it caused orthostatic hypotension (low blood pressure) and it he passed out (Apoykyn is not like levodopa but similar to Miralax). Inbrijia is a levodopa powder that goes into a rescue inhaler for those bad "off" times. He hasn't started it yet but was wondering if anyone has had experience with this new medication. Thanks.
And how do you deal with them and what do you do during these off times? Bean
Having extreme weight loss ?? And she has lost about 15 pounds in the last three months maybe a little bit more she hasn’t been doing anything to lose this weight so I’m very concerned she has started having quite a bit of problems swallowing at the end of the day more so Than during the day!! She has been falling quite a bit lately and passing out she’s passed out three times in the last month blood pressure is good I’m concerned because in our area there is no treatment centers for like the… read more
Been on typical PD meds for 15+ years and hoping there’s some light ahead.
I don't have a tremors but my symptoms started with my right leg.
One day I realized that I was limping and I couldn't straighten my right leg.
Does anyone take Rytary to smooth out instances of dyskinesia? Did you have more side effects? My doctor said I would feel weird on it.
The FDA approved this in December does anyone know roughly how long it takes for the UK to catch up once a drug like this gets approved in the US?