How fast is it working for everyone? What is the effect on the next dose of rytary? How often do you use it?
Has anyone taken Inbrija? It took me 2 months to get it but I got it Tuesday pm & took it for the first time yesterday. It started working in about 10 minutes & full effect was about 35 min. I usually have totally incapacitating off times. Dizzy, lightheaded, nausea, shortness of breath, overall weakness, stiffness, hand & leg tremors, severe & painful toe curling. It usually lasts for about an hour-1.5 hours & sometimes my Sinemet doesnt work at all. I was totally taken back, praising the Lord… read more
My husband's neurologist just prescribed the Inbrijia inhaler to help with "off" times. He was taking the Apokyn injection as needed but it caused orthostatic hypotension (low blood pressure) and it he passed out (Apoykyn is not like levodopa but similar to Miralax). Inbrijia is a levodopa powder that goes into a rescue inhaler for those bad "off" times. He hasn't started it yet but was wondering if anyone has had experience with this new medication. Thanks.
Having extreme weight loss ?? And she has lost about 15 pounds in the last three months maybe a little bit more she hasn’t been doing anything to lose this weight so I’m very concerned she has started having quite a bit of problems swallowing at the end of the day more so Than during the day!! She has been falling quite a bit lately and passing out she’s passed out three times in the last month blood pressure is good I’m concerned because in our area there is no treatment centers for like the… read more
Does anyone else take rytary and carvadopa/levadopa at the same time. I was in the ER because the medication reaction and they said it was because I was taking these 2 meds together. Just wondered if anyone else is on that combination?
My husband could not take Ratary. It was not kind to him.
Good old C/L 4x a day with C/L er at night
I have been taking this in between my other meds . Now none of the pharmacies in our town can get it in. Some say it is back ordered and others say it isn't even on their list to order anymore. Is anyone else having this problem? IF so have you found a substitute for the ODT form?
I saw my neurologist yesterday and she has me taking a regular tablet and having me chew it in place of the disintegrating tablet. Hopefully that will work.
My doctor prescribes different types of levadopa, I take multiple medications
for other condistions and dont want to keep adding to it. Is it worth while
I could take it every day if I was into vomiting for hours on end. But I hate throwing up and I don’t know that it helps MSA.
Does anyone else have cramping in your legs and feet at night? I have it every night and it’s frustrating!